Living with ulcerative colitis (UC) can make working, maintaining relationships and juggling family responsibilities difficult. A global survey of 1,254 gastroenterologists and 2,100 adults with a self-reported history of UC revealed both men and women experienced the impact of UC on day-to day life, including emotional wellbeing.1

Now, with the added challenges of navigating the COVID-19 pandemic, focusing on emotional wellbeing is more important than ever.

Laurie Keefer, PhD, who is a psychologist with Mount Sinai Hospital’s IBD Center in New York City who specializes in the psychosocial care of patients with chronic digestive diseases, most notably Crohn’s and ulcerative colitis (UC). Allyson, who has a history of UC, to discuss the emotional impact of UC and share tips for those living with UC on how to have more effective conversations with their healthcare team. Both Dr. Keefer and Allyson have been compensated by Pfizer to appear in this interview today.

Before we start, it is important to note that results from the UC Narrative are not representative of all UC patients, and only reflect responses of those who took the survey. For more information about the survey limitations and methodology, visit talkinguc.com.

BIO: Dr Laurie Keefer is an academic health psychologist and the Director for Psychobehavioral Research within the Division of Gastroenterology. She specializes in the psychosocial care of patients with chronic digestive diseases, specifically inflammatory bowel diseases such as Crohn’s or ulcerative colitis. Dr. Keefer came to Mount Sinai in January 2016 from Chicago, IL to lead a subspecialty medical home for inflammatory bowel diseases (IBD).

The Mount Sinai IBD medical home, known as GRITT-IBD(TM) focuses on gaining resilience through transitions as they occur across the lifespan of patients living with Crohn’s disease and ulcerative colitis. Dr Keefer’s clinical and research interests are in the area of IBD disease self-management, gut-directed hypnotherapy, resilience, the psychosocial care needs of emerging adults with chronic disease and cognitive-behavior therapy. She is a sought after speaker and mentor. She chairs the Division of Psychogastroenterology within the Rome Foundation and is on the Council of the American Neurogastroenterology and Motility Society.

BIO

My name is Allyson and I was diagnosed with Ulcerative Colitis (UC) in 2007 at the age of 29. In hindsight I am certain I had symptoms that went undiagnosed for years, if not back to childhood. My diagnosis and progression of my UC was quite rapid and debilitating, resulting in being bed ridden and hospitalized within less than a month. After 3 years of hospitalizations and a very poor quality of life, I made an emergent decision to have a 3-stage total colectomy. This process had profound impacts of my physical and emotional wellbeing, as well as self-image due to body changes, and I feel strongly about advocating for patients with UC. I feel I often went without a voice until I was able to learn to speak up for myself as I learned more about my UC. As there is no cure, I continue to manage my daily life in often challenging, or what would appear impossible situations to those without UC. I am resilient and strong in a way that I only learned through my UC journey. I live a fulfilling life that may require adjustments, and I am grateful for the opportunities to advocate.

Interview courtesy: Pfizer

#ulcerative #colitis #uc #maintaining #work #relationships #juggling #family #laurie #keefer #allyson #sinai #hospital #new #york #city #nyc #chronic #digestive #diseases #disease #pfizer #covid #19 #covid-19 #covid19 #wellbeing #well #being #coronavirus #pfizer

The post Living with ulcerative colitis… appeared first on Good News!.

MYSTIC GARDEN IS a transformational festival gathering experience which offers a taste of the West Coast, the Tribal, and the sublime! Our festival gathering offers an experience of evolutionary culture. August 16-18th.

The Mission of this gathering of the Tribes event is to create a fun, inspiring and nurturing environment that is mutually supportive to uplift us and bring out the best in us all.

We envision that by gathering many our circles or “tribes” together to share our gifts and experiences be it Yoga, Ecstatic Dance, Native Traditions such as Sweat Lodges, Devotional Music, Sustainability Practices, etc. that we all be expanded, experience growth and empowered to live more fulfilling lives.

Join us for 3 days of Live Music, Ecstatic Dance, Yoga, Workshops and Visionary art by ALEX GREY and Allyson Grey during the 44th anniversary of WOODSTOCK at Yasgur’s Farm, in Bethel!!!

These 3 days & nights offer camping, dancing, and an experience of healthier, more sustainable & thriving lifestyle and includes full access to the 44th Anniversary Woodstock’s festival of 42 bands and 2 more stages!

Our alcohol free Mystic zone at the WOODSTOCK area is a ways away from the main Woodstock festival area but walking distance down the hill.

Mystic Garden at Yasgur’s Farm!!!!

Located on State Route 17B & Yasgur Rd., Bethel, NY

BUY TICKETS FOR $100 at https://www.eventbrite.com/event/7827836269

Website Link: http://mysticny.com/

Facebook Page: https://www.facebook.com/events/604767206207834/

Back in 69′ at the 1st WOODSTOCK part of unofficial sub-title for that generation was: “SEX, DRUGS & ROCK & ROLL….”

Well, we’ve learned a few things over the past 40 years about how to ‘get high on life’…. our “Transformational Festivals Movement still is centered around great music to dance & let go to…AND… NOW A MAIN PART OF OUR INSPIRATION IS:  “YOGA, SUPER FOODS, and ECSTATIC DANCE!”

The post Phil Lindsey appeared first on Good News!.

The Mission of this gathering of the Tribes event is to create a fun, inspiring and nurturing environment that is mutually supportive to uplift us and bring out the best in us all.

We envision that by gathering many our circles or “tribes” together to share our gifts and experiences be it Yoga, Ecstatic Dance, Native Traditions such as Sweat Lodges, Devotional Music, Sustainability Practices, etc. that we all be expanded, experience growth and empowered to live more fulfilling lives.

Join us for 3 days of Live Music, Ecstatic Dance, Yoga, Workshops and Visionary art by ALEX GREY and Allyson Grey during the 44th anniversary of WOODSTOCK at Yasgur’s Farm, in Bethel!!!

These 3 days & nights offer camping, dancing, and an experience of healthier, more sustainable & thriving lifestyle and includes full access to the 44th Anniversary Woodstock’s festival of 42 bands and 2 more stages!

Our alcohol free Mystic zone at the WOODSTOCK area is a ways away from the main Woodstock festival area but walking distance down the hill.

Mystic Garden at Yasgur’s Farm!!!!

Located on State Route 17B & Yasgur Rd., Bethel, NY

BUY TICKETS FOR $100 at https://www.eventbrite.com/event/7827836269

Website Link: http://mysticny.com/

Facebook Page: https://www.facebook.com/events/604767206207834/

Back in 69′ at the 1st WOODSTOCK part of unofficial sub-title for that generation was: “SEX, DRUGS & ROCK & ROLL….”

Well, we’ve learned a few things over the past 40 years about how to ‘get high on life’…. our “Transformational Festivals Movement still is centered around great music to dance & let go to…AND… NOW A MAIN PART OF OUR INSPIRATION IS:  “YOGA, SUPER FOODS, and ECSTATIC DANCE!”

The post MYSTIC GARDEN appeared first on Good News!.