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Hear from Azure Antoinette, the “Maya Angelou of the Millennial Generation,” …
On Living Well with MS for Black Americans. https://www.moretoms.com/

Azure Antoinette is a commissioned poet, entrepreneur and arts education advocate. She has been living with multiple sclerosis (MS) for over a decade. Azure will be joined by Board-Certified Neurologist and world-renowned MS Specialist Dr. Mitzi Joi Williams, who is an advocate for living well with MS, especially for Black Americans, who may be more at risk for MS than previously thought.

Azure was diagnosed with relapsing-remitting multiple sclerosis (RRMS) at age 28. In her early twenties, she began having spasms, tingling in her hands and feet, and had trouble walking. She felt so tired that it was difficult to stay awake, to watch a movie or drive a car, even after sleeping for 16 hours some nights.

The fatigue experienced by MS patients is much different from an everyday tired feeling, and it can come on with no warning. Managing MS fatigue is an ongoing challenge because it isn’t a one-size-fits-all symptom.

Just ask Dr. Williams, who partners with patients to create personalized treatment plans for their distinctive MS experiences, including:
 Feeling excessively tired or weary
 Having trouble with memory or mental focus
 Experiencing muscle weakness or trouble with coordination

In a public service announcement (PSA) launching in February, Azure encourages Black Americans living with MS to pay attention to their symptoms and advocate for their health. She also shares her first-hand experience as a Black woman living well with MS in a documentary alongside Dr. Williams, who explains what symptoms to watch out for and advice on staying active while managing often overwhelming MS symptoms.

MS is an autoimmune disease where the body attacks itself, making it difficult for the brain to communicate with the rest of the body.2 Approximately one million adults live with MS in the U.S., a majority of whom are diagnosed with RRMS. Women are three times more likely than men to develop RRMS, and Black Americans have an increased risk of developing progressive symptoms.2

Azure and Dr. Williams discuss the upcoming PSA and documentary launch – in time for Black History Month in February and MS Awareness Month in March – and More to MS, an educational resource to help patients and their caregivers learn more about and better manage MS symptoms like fatigue.

Interview courtesy: Janssen

References
1 The National Multiple Sclerosis Society. Fatigue. https://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms/Fatigue. Accessed January 2021.
2 Multiple Sclerosis Association of America. Who Gets Multiple Sclerosis. https://mymsaa.org/ms-information/overview/who-gets-ms/. Accessed December 2020.

#multiple #sclerosis #mitzi #joi #azure #antoinette #williams #maya #angelou #millennial #generation #ms #living #well #americans #moretoms #poet #entrepreneur #arts #education #fatigue #spasms #tingling #awake #feet #hands #tired #mental #focus #weak #coordination #muscle

The post AN OFTEN INVISIBLE BUT DEBILITATING SYMPTOM OF MULTIPLE SCLEROSIS appeared first on Good News!.

DUKE ELLINGTON CENTER FOR THE ARTS  (DECFA) TO CELEBRATE 118^TH BIRTHDAY OF DUKE ELLINGTON WITH A FREE MUSICAL CELEBRATION ON APRIL 29, 2017 AT THE DUKE  ELLINGTON STATUE AT 110^TH STREET AND FIFTH AVENUE FROM 1 TO 3 PM

The Program, Titled  Ellington Swings in Harlem , Will Feature The Eli Yamin Orchestra , Jazz Vocalists Antoinette Montague and Marion Cowings, And Tony Waag and Members of His American Tap Dance Foundation

The Duke Ellington Center for the Arts (DECFA) will celebrate the 118th birthday of Duke Ellington with a Free all-Ellington musical performance on Saturday, April 29, 2017 from 1 to 3 PM which will be staged at the Duke Ellington statue that stands majestically at the corner of 110th Street and Fifth Avenue – the Gateway to Harlem, it was announced by noted dancer/choreographer Mercedes Ellington, Duke Ellington’s granddaughter, who is Founder/President of DECFA.  http://decfa.org/

The musical program, titled Ellington Swings in Harlem, produced by Mercedes Ellington, will star jazz vocalists Antoinette Montague and Marion Cowings, Tony Waag and members of his American Tap Dance Foundation and the swinging Eli Yamin Orchestra (EYO), featuring singers James Zollar and Claire Daly.

“This annual birthday celebration at my grandfather’s statue is very special to me,” says Ms. Ellington. “Uncle Edward – the name Ellington preferred to be called by members of his family – tried to instill his values with me. I started the Duke Ellington Center for the Arts in 2004 to ensure that these values – his musical legacy and the term ‘beyond category,’ which he used to define excellence – will live on. Along with the great work of Wynton Marsalis in this area, we are dedicated to make Uncle Edward’s legacy continually meaningful to new generations of musicians and music lovers.”

DECFA is a not-for-profit 501(c)(3) organization that plans on developing Duke Ellington’s staggering number of musical compositions (over 3,000) into multi-disciplinary theatrical presentations and educational programs, to be performed in many different types of venues all over the globe. The Center also tries to keep an accurate record of all things Ellington for the benefit of future generations.

Edward Kennedy “Duke” Ellington was born April 29, 1899 in Washington, DC, and died on May 24, 1974 in New York City. He was America’s most prolific composer of the 20th century in both volume and variety.

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