Discover the latest research and practical tips to boost your well-being and aim for 120 years — with quality and quantity of life.

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JUST IN TIME FOR WORLD FTD AWARENESS WEEK, WE’RE JOINED TODAY BY DEB, WHO HAS BEEN A CAREGIVER TO SOMEONE WITH F-T-D, AND DR. TIFFANY CHOW, VICE PRESIDENT OF CLINICAL DEVELOPMENT AT ALECTOR AND A NEUROLOGIST EXPERT IN DEMENTIA.

BIO-About Dr. Tiffany Chow
Dr. Tiffany Chow is a Vice President, Clinical Development, Neurology at Alector. She is the author of Canadian bestseller, The Memory Clinic, a comprehensive and ultimately reassuring work about the prevention and management of dementia. She has spent most of her career as a Behavioral Neurologist working with patients and families living with dementias and supporting clinical trials for these illnesses.
Prior to joining Alector, Dr. Chow was a Senior Medical Strategy Director (Central Nervous System) at IQVIA, where she engaged with sponsors developing therapeutics for dementia, multiple sclerosis, myasthenia gravis, Duchenne’s muscular dystrophy, and migraine.
Dr. Chow is also an Adjunct Professor at the University of Pennsylvania Department of Pathology and Laboratory Sciences. She has previously served as Neurology faculty for the University of Southern California, the University of Toronto, and the University of California at Los Angeles. She earned her MD from Rush

The post FOR CAREGIVERS OR RELATIVES WHO WATCH THE PROGRESSION OF A DISEASE CALLED FRONTO-TEMPORAL DEMENTIA, OR F-T-D, IN A FAMILY MEMBER, IT CAN FEEL LIKE A STRANGER HAS MOVED INTO THE HOUSEHOLD. appeared first on Good News!.

Celebrated every November, National Family Caregivers Month is a time to recognize and honor caregivers across the US. In a study by the National Alliance for Caregiving, about 50% of 111 cancer caregivers reported feeling “highly stressed” due to the intense and demanding nature of caregiving, and there is growing evidence this could potentially affect the mental health of the patients as well.1,2

In particular, the mental health of patients with blood cancer, including those living with chronic lymphocytic leukemia (CLL) and their caregivers, can be impacted due to the physical, emotional and social effects of the disease.3,4

CLL is the most common leukemia in adults.5 It’s a type of cancer that starts in cells that become certain white blood cells (called lymphocytes) in the bone marrow. 5 The cancer (leukemia) cells start in the bone marrow but then go into the blood.5

As with other illnesses, COVID-19 has exacerbated the mental health impact of blood cancer on patients, as well as placing an added strain on caregivers. In a recent survey of 100 patients with blood cancer, 96% of patients reported their blood cancer has impacted their mental health since the start of the pandemic in 2020, and 72% of patients said they rely most on their family members to provide them with emotional support for their blood cancer.

Hematologist and oncologist Dr. Ken Miller of Sinai Hospital in Baltimore, Maryland, who will discuss the impact of blood cancer, including CLL, on the mental and emotional health of both patients and caregivers, and share resources to help meet this important need.

http://understandbloodcancer.com/

This program is made possible by AstraZeneca.

Dr. Ken Miller is a hematologist and medical oncologist at the Sinai Hospital in Baltimore, Maryland. Dr. Miller has served as the Director of Outpatient Oncology and was a member of the Thoracic Oncology Group at the University of Maryland. He also previously served as the Director of the Yale Cancer Center’s survivorship clinic and the Director of the LiveStrong Survivorship Center of Excellence at the Dana-Farber Cancer Institute. He has authored five books, including: Choices in Breast Cancer, Medical and Psychosocial Care of the Cancer Survivor, Excellent Care of Cancer Survivors, Global Cancer Care, and “The Breast Cancer Book”. Dr. Miller’s wife Joan is a two-time cancer survivor and together they have lectured nationally and internationally on the role of empathy in medicine. They have three children and four grandchildren.

#nationalcaregiversmonth #nationalfamilycaregiversmonth #nationalfamilycaregivers #nationalcaregivers #cancer #lendingsupport #patients #emotionaltoll #bloodcancer #health #physical #social #mental #leukemia #understandbloodcancer #kenmiller #drkenmiller #hematologist #oncologist #sinaihospital

The post November is National Family Caregivers Month, LENDING SUPPORT TO CANCER CAREGIVERS DURING NATIONAL FAMILY CAREGIVERS MONTH AND BEYOND appeared first on Good News!.

During National Cancer Survivors Month, people around the country are recognizing the more than 16.9 million cancer survivors in the U.S. who are living with, through, and beyond their disease. www.lls.org

One of the most innovative treatments giving hope to people with blood cancers such as lymphoma, leukemia or myelomas is CAR T-cell therapy.1
• CAR T-cell therapies are made from a patient’s own blood cells and use the immune system to identify and attack cancer cells.2
• These innovative treatments have shown to be potentially life-saving therapies for patients with certain blood cancers, like large B-cell lymphoma (LBCL), which is the most common form of non-Hodgkin lymphoma and can be aggressive.2,3
• However, awareness of CAR T-cell therapy among potentially eligible patients in the U.S. is low – only about 1 out of 5 are aware of the therapy as a treatment option.4

Michael, a small business owner and father of three girls living in New Jersey, was diagnosed with LBCL in October 2018 and was treated with chemotherapy which he described as “pretty aggressive.” His cancer quickly returned – only four months later – and he decided to participate in a clinical trial for CAR T-cell therapy. Today he is 3+ years cancer-free.

Dr. Lori Leslie, a hematologist and oncologist at Hackensack Meridian John Theurer Cancer Center in New Jersey, treats people with blood cancers and has seen firsthand their devastating impact particularly for those whose cancer returns. Dr. Leslie, who treated Michael with CAR T-cell therapy, is available to discuss how recent treatment advances like CAR T-cell therapies offer people like Michael hope.

Michael and Dr. Leslie speak about CAR T-cell therapies for cancers like LBCL and how eligible patients and caregivers can learn more about these innovative treatments.

Interview is courtesy: Kite, a Gilead Company

1Siegel RL, Miller KD, Fuchs HE. Cancer statistics, 2022. CA Cancer J Clin. 2022;70:7-33.
2Zhao L, Cao YK. Engineered T cell therapy for cancer in the clinic. Front Immunol. 2019;10:1-20.
3National Cancer Institute. Cancer stat facts: Non-Hodgkin lymphoma. https://seer.cancer.gov/statfacts/html/nhl.html. Accessed May 10, 2022.
4 Data on File.

#michael #drlorileslie #car #t-cell #therapy #cancer #lbcl #patients #caregivers #innovativetreatments #kitegileadcompany #bloodcells #cancersurvivors #lls #b-cell

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Military Family Month was established by the Armed Forces YMCA in 1996. Proclamations have been issued by U.S. Presidents in recent times, and this year President Biden has followed suit, stating America has the greatest Armed Forces in the history of the world. He says we all owe a debt to those who serve and those that serve alongside them – their families and caregivers.

http://usar.army.mil/

The backbone of the Army Reserve force is its Families, which is why each November we recognize their commitment, resilience and critical contributions to the Army Reserve.

Just like the Soldiers they support, Army Reserve families are strong and resilient, but face unique challenges. It’s the people of the Army Reserve that deliver on its priorities – readiness, modernization and reform – so taking care of service members and their families is equally important to the mission.

The Army recognizes that service members’ Families, like spouses and kids, also feel the effects of service – whether through relocation, distance from loved ones, among other challenges – but is committed to providing the best quality of life possible. The love and support from military Families is unwavering.

Throughout this awareness month and beyond, the Army Reserve focuses on the community-based services that foster the growth, development and readiness of Soldiers and Families.

Captain Brigette Miller and her husband, Nathaniel, discuss their Military Family experience. Miller will also discuss her journey from military kid to Army Reserve Soldier will offer great insight into the importance of this community. Captain Miller will also share how an Army Reserve Family Readiness Group has supported her unit.

Interview is courtesy: U.S. Army Reserve

#military #family #gratitude #appreciation #support #armed #forces #ymca #biden #president #caregivers #army #reserve #spouses #kids #awareness #brigette #miller #nathaniel #captain

The post November is Military Family Month WHY IT’S IMPORTANT TO SEND GRATITUDE, APPRECIATION & SUPPORT TO U.S. MILITARY FAMILIES IN 2021 appeared first on Good News!.

It’s always critical for people with heart failure (HF) to take steps to keep healthy and to try to reduce the risk of hospital visits – but now, as these patients face increased health risks and hospitals are overburdened, it’s more important than ever.

HF is a chronic, progressive condition that can change the structure of the heart so it is unable to pump enough blood to the body. Patients with HF are inherently at increased risk of hospitalization for symptoms like shortness of breath or swelling – often in the legs, ankles, feet and/or abdomen. Hospitalizations for HF are a hallmark of disease progression, or worsening of the condition.

Annually, HF accounts for about 1 million hospitalizations. That’s about 2 HF hospitalizations every minute in the U.S.

A visit to hospital for heart failure can average between five and ten days – further, around one in four patients are re-admitted within 30 days of discharge, and one in ten may not survive.

These recurrent experiences can profoundly disrupt the lives of patients and caregivers.

For people living with heart failure, hospitalizations can be a recurring part of life. But finding the right care plan with a health care provider can help people actively manage their condition to reduce their risk of HF hospitalizations.

Kim, for example, is a patient who used to experience frequent HF hospitalizations before changing her treatment regimen. Looking back, this hardworking single mom was referred to a lung specialist by her primary care physician because of a persistent cough that wouldn’t go away. At just 32 years of age, she was shocked to be diagnosed with chronic heart failure, a condition that would lead her to endure frequent heart failure hospitalizations over the next several years.

Fortunately, Kim was able to work with her health care team on a plan, including a healthy lifestyle and treatment regimen that would help manage this chronic condition. In fact, there are steps HF patients can take to help reduce the risk of a HF hospitalization. These can include following a low-salt diet, getting an appropriate amount of physical activity, and maintaining the treatment regimen advised by their health care provider.

Beth Davidson, a heart failure nurse practitioner in Nashville, TN, and President of the American Association of HF Nurses, will be available to discuss the prevalence of HF, a condition affecting over 6 million people in the U.S., and projected to affect approximately 8 million by 2030. She can discuss the seriousness of HF hospitalizations, HF symptoms, treatment and lifestyle tips that may help patients or a loved one manage the condition. Kim will also share her story and how she is successfully managing her HF today.

Novartis

www.entresto.com

#heart #failure #beth #davidson #health #kim #nurses #hospital #risk #pump #blood #breath #shortness #swelling #disease #patients #caregivers #novartis #entresto #symptoms

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PUZZLING SKIN CONDITION AFFECTS MORE THAN MEETS THE EYE
THE HIDDEN REALITY OF LIVING WITH A CHRONIC SKIN DISEASE

Hidradenitis suppurativa (HS) is an under-recognized and chronic inflammatory skin condition caused by an overactive immune system that can often go undiagnosed or misdiagnosed for years. The symptoms of HS include recurrent, painful abscesses and lesions and can have a significant physical, mental and social impact. HS can be progressive and increase in severity over time.

HS also presents itself in sensitive areas like the armpits, groin and under the breasts and buttocks, so it may be hidden by clothing – leaving many to suffer in silence. Further, the lack of awareness around this disease may lead to patients going undiagnosed or misdiagnosed for seven or more years. Patients may visit a number of doctors before finding a dermatologist with experience in managing HS to confirm diagnosis and determine a plan that best fits their specific needs.

Dr. Joslyn Kirby, a dermatologist with Penn State University, will bring greater understanding about HS by sharing how it’s more than just an inflammatory skin disease. Dr. Kirby will also discuss the importance for HS patients – along with their caregivers – to advocate for their care and seek out a dermatologist with experience treating HS who can help patients to receive an accurate diagnosis and appropriate treatment options.

Interview courtesy: AbbVie Inc.

#november #healthy #skin #month #condition #meets #eyes #eye #chronic #disease #hidradenitis #suppurativa #hs #inflammatory #overactive #immune #system #undiagnosed #misdiagnosed #symptoms #recurrent #painful #abscesses #lesions #physical #mental #social #impact #increase #dermatologist #penn #state #university #psu #caregivers #treatment

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Three tips all organ recipients and their caregivers should know for monitoring organ health, particularly during COVID-19

Approximately 80 people undergo organ transplants each day – these recipients are presented with unique challenges during the pandemic that require them to make substantial changes in ways that they receive medical care from their healthcare professionals. Organ recipients are at higher risk of contracting the virus because the immunosuppressive drugs they take to prevent organ rejection also limit their body’s ability to ward off infection.

As restrictions start to lift, and the world seems more like normal, existing transplant patients would benefit from practical tips that help them remain informed and hyper-vigilant about safety. And as organ transplant surgeries begin to resume at centers around the country, transplant professionals can provide guidance to new patients regarding staying healthy in our “new normal” environment.

Leading transplant surgeon Adam W Bingaman, MD, PhD, Director of Abdominal Organ Transplantation at Methodist Hospital/Specialty and Transplant, is on the front lines during this crisis in his community and is available to provide tips to both patients and their caregivers about keeping safe, during the “new normal.”

• Seek Care with Telemedicine: Consult with your doctor about available telemedicine programs. Also known as telehealth, telemedicine uses phones, tablets and laptops for virtual medical appointments, remote but in real-time, with healthcare professionals.
• Evaluate Caregivers’ Risk: In addition to transplant patients being hyper-vigilant of their own health, they must also monitor their caregivers’ exposure to the public. If a caregiver needs to go into public areas– for example, if they are an essential worker – then they should take necessary precautions.
• Inquire About Home Blood Draws: Transplant patients undergo frequent blood tests in labs or hospitals to monitor for the health of their transplanted organs. There are at-home services that A service allows patients to receive home blood draws from trained technicians called phlebotomists to access for organ rejection:
• Dr. Adam Bingaman, will be available to discuss what transplant patients can expect during COVID-19 and to share helpful tips on ways to protect a transplanted organ. Additionally, CareDx CEO Peter Maag – the company behind RemoTraC – is available to discuss widespread usage of the service during COVID-19, and the company’s ongoing commitment to addressing patient needs.

Interview courtesy: CareDx, Inc.

#caredx #adam #peter #bingaman #maag #navigating #new #normal #transplant #patient #tips #organ #recipients #caregivers #monitoring #health #covid #covid19 #covid-19 #transplants #pandemic #require #changes #medical #care #healthcare #virus #drugs #ability #environment #abdominal #transplantation #hospital

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Dr. Lisa C. Richardson, Director of the Centers for Disease Control and Prevention’s (CDC) Division of Cancer Prevention and Control (DCPC), discuss what cancer patients and their caregivers need to know to stay well while staying at home during the COVID-19 crisis. Dr. Richardson will outline the proper steps necessary to help lower the chance of spreading an infection to your family member or friend with cancer.

For more information, please visit:
https://www.cdc.gov/coronavirus
https://www.cdc.gov/cancer/survivors/staying-well-at-home.htm and https://www.preventcancerinfections.org/

When you book a window, we’ll provide guest bio & suggested questions. Interview courtesy: CDC

The post WHAT CANCER PATIENTS, SURVIVORS, and CAREGIVERS NEED TO KNOW TO REDUCE RISK OF COVID-19- Dr. Lisa C. Richardson, Director of the Centers for Disease Control and Prevention’s (CDC) Division of Cancer Prevention and Control (DCPC) Dr. Lisa C. Richardson, Director of the Centers for Disease Control and Prevention’s (CDC) Division of Cancer Prevention and Control (DCPC) appeared first on Good News!.

For many people, becoming a caregiver is often a new, unfamiliar experience. And finding the right information – or even knowing where to look – can be challenging. That’s why we’re bringing everything to you. Here you’ll find articles, product recommendations and other resources picked just for you to help in your caregiving journey.

#account #article #articles #care #caregiver #caregivers #ces #challenge #challenging #cheri #director #experience #geraffo #giver #givers #health #healthcare #journey #management #national #product #resource #sale #sales #solutions #uhc #unfamiliar #united #unitedhealth #unitedhealthcare

The post Cheri Geraffo, National Director of Sales and Account Management share UnitedHealthcare Solutions for Caregivers https://www.uhcforcaregivers.com at CES. A outstanding resource for caregivers. appeared first on Good News!.