PGHD is characterized by insufficient production of growth hormone (GH) by the pituitary gland, which is a small gland located at the base of the brain. It is estimated that 1 in 4,000-10,000 children globally have PGHD.

Here are 7 things children with PGHD may experience:

Short stature
Delayed puberty
Bone development challenges
Decreasing muscle mass and weakness
Emotional challenges
Low blood sugar
Reduced strength and endurance
Left untreated, PGHD can limit a child’s potential, physically, emotionally, and socially.

PGHD doesn’t just affect children—parents and caregivers of children with PGHD may feel discouraged and overwhelmed during this journey. Their concerns and fears about how this condition will impact their child can leave them feeling unheard.

It’s critical for parents to consult a healthcare professional as soon as they begin to notice delays in their child’s growth. Early diagnosis of PGHD and treatment are time-sensitive, especially because a child’s growth plates will eventually fuse, limiting their ability to achieve their full height potential. Delaying treatment can negatively impact final adult height and potentially affect other aspects of development.

For decades, the only treatment option available was daily injections of human growth hormone (somatropin). Long-acting growth hormone treatments have been developed that are given just once a week.

Healthcare professionals can work with parents to determine if treatment is needed and help ease concerns such as:

Noticing growth concerns and seeking guidance
Feeling anxious about timely diagnosis before growth plates fuse
Uncertainty about options to treat PGHD
Navigating the responsibilities of PGHD management
On Wednesday, September 17, Dr. Nidhi Gupta, pediatric endocrinologist, and founder and CEO of KAP Pediatric Endocrinology, is available to share her insights on what all parents need to know about PGHD. She will also discuss its signs and symptoms, and how treatment can help.

Interview courtesy: Ascendis Pharma

#AscendisPharma #GrowthAwarenessWeek #ChildsOverallHealth #PGHD #DiagnosingPediatricGrowthHormone

The post IS MY CHILD’S GROWTH ON TRACK? What Parents Should Know September 14-20: Children’s Growth Awareness Week appeared first on Good News!.

internationalchildrensmonth@gmail.com

www.internationalchildrensmonth.com

JUNE GUIDE www.internationalchildren.world

–International Children’s Month 2022: International Children Love Grace and Resilience. An exploration.

Enjoy nine years of activities to empower children and youth, on a mission of love, care and respect for all children. June is “International Children’s Month” with a special focus on June 21st, at 1:11 pm in every time zone for our annual “Children’s Global Wave of Love” ! …. let’s get hands on ! Hands onto heart that is.

Workshops, partnerships and events please email

internationalchildrensmonth@gmail.com

Support ICM youth and rock a ONE t shirt !! www.oneclothingunify.com

Introducing “FOR CAUSE MUSIC” Support International Children’ Month outreach work and activities by purchasing a song www.wetheworld.bandcamp.com

Our partners to date:

United Earth https://united-earth.vision/en

The Earth Wisdom Foundation www.earthwisdomfoundation.net

Niagara Hug 2016 June 21st, 2016 1:11 pm

The Black Jaguar Foundation www.thelast600.org

One Clothing Unify www.oneclothingunify.com

Heidi Little www.heidilittle.com

Imagine Peace Flame www.theearthconstitution.com

Imagine Nation

Grandmother Crossbear Ojibwe Nation

Golden Eagle Ceremonies www.keepthewatersflowing.com

Earth Guardians www.earthguardians.org

Dr. Emoto / Hado Foundation For Water http://www.emoto-peace-project.com/en/world-peace-project/

Honoring The Circle www.honoringthecircle.moonfruit.com

And more

#goodnews #love #viralvideo #heidelittle #heidilittle #loveforall #music #caringforchildren #peace #peaceday

The post Heide Little share her love for all, her music, caring for children and her Peace Day Participation! appeared first on Good News!.

Lots of love to all…

The post Every dog should have a child. All we need is love! appeared first on Good News!.

for more about Vernon Gibbs, go to http://goodnewsplanet.com/what-does-peave-mean-to-vernon-gibbs-ii/

#vernon #gibbs #children #books #tv #show #illustrated #steven #gray #cuzzos #publishing #media #good #fruit #bad #child #mental #health #art #design

The post Good News speaks to Vernon Gibbs II’s about his children’s books and TV show appeared first on Good News!.

Oxygen deprivation in utero resulted in Kenny being born deaf with partial blindness, partial paralysis on his left side, and an inability to speak clearly until the age of 10. Kenny also suffers cognitive impairment, similar to the fictional character Forrest Gump, which gives him the same child-like innocence and leads to the same sort of hilarious misunderstandings and malaprops that made Gump both lovable and entertaining.
Kenny’s life could easily have been nothing but a depressingly sullen tale of victimhood. Instead, it turned out to be one filled with a unique combination of joy, humor, friendship, heartbreak, accomplishment, faith, and peace.
From his time spent with Kenny, Paul Smith will talk about:
• Being A Storyteller
• His unique relationship with Kenny
• Meeting Kenny and what inspired him to write this book
Praise for FOUR DAYS WITH KENNY TEDFORD
“Kenny is definitely a hero that everyone needs. Please have a sequel! This book will change your life as it did mine!”
– Miles Barbee, acclaimed Broadway and screen Dea actor and star of The Silent Natural
“A touching and sensitively crafted account of a differently-abled and extraordinarily gifted storyteller. The collaborative oral autobiography is a fine piece of work, and it is a pleasure to spend days in its company.”
– Joseph Sobol, Ph.D., Director, George Ewart Evans Centre for Storytelling, University of South Wales
“Authentic, compelling, and poignant…profound life lessons from an unlikely and extraordinary person!”
– Sandy Cohen, Tennessee Director of the Library Services for the Deaf & Hard of Hearing
“You cannot help but see how a simple thing in life can be both magnifying and amusing…whenever you have a tough day, simply think about Kenny…he will nudge your conscience with a cornucopia of his personal and humorous stories.”
– Peter Cook, internationally renowned Deaf performing artist
“In a current society where labels seem to carry a lot of weight, it is enlightening to see how one man disregards the labels assigned to him by others (including his family and friends). On his journey to success, Kenny Tedford has triumphed by focusing on his strengths and abilities. A must-read for anyone wanting to learn how to see the person (and not the label).”
– Libby Tipton, certified sign language interpreter, and president, Jonesborough Storytellers Guild

About the Author, Paul Smith
Paul Smith is one of the world’s leading experts on organizational storytelling. He’s one of Inc. Magazine’s Top 100 Leadership Speakers of 2018, a storytelling coach, and author of the Amazon #1 bestsellers, Lead with a Story (now in its 11th printing, and published in 7 languages around the world) and Sell with a Story, in addition to his latest works, The 10 Stories Great Leaders Tell and Four Days with Kenny Tedford. He’s a former executive at The Procter & Gamble Company and a consultant with Accenture prior to that.
As part of his research on the effectiveness of storytelling, Paul has personally interviewed over 300 CEOs and executives in 25 countries and documented over 3,000 individual business stories. That’s allowed him to reverse engineer what works in storytelling and what doesn’t. His work has been featured in The Wall Street Journal, Fast Company, Inc. Magazine, Time, Forbes, and Success Magazine, among others.
Paul has trained executives at international giants like Google, Hewlett Packard, Ford Motor Company, Bayer Medical, Novartis, Abbott, Progressive Insurance, Luxottica, Walmart, Kaiser Permanente, among dozens of others. A 20-year veteran of P&G, Paul was most recently director of consumer and communications research for the company’s $6 billion global paper business where he led a research team across four continents. He has also held leadership positions in corporate finance, manufacturing plants, and sales working closely with major retailers around the world like Walmart, Costco, Asda, and Sam’s Club.
Paul holds a bachelor’s degree in economics and an MBA from the Wharton School at the University of Pennsylvania. He lives with his wife and two sons in the Cincinnati suburb of Mason, Ohio. Find out more about Paul Smith by visiting his website LeadWithAStory.com You can also follow him on Facebook @LeadWithAStory and LinkedIn @smithpa9! Find out more about Kenny Tedford Jr. by visiting his website KennyTedford.com You can also follow him on Facebook @Kenny Tedford Jr.!
Four Days With Kenny Tedford: Life Through the Eyes of a Child Trapped
in a Partially Blind & Deaf Man’s Body
By Paul Smith and Kenny Tedford Jr.
Publisher: Behler Publications | November 26, 2019
ISBN-10: 1941887023
ISBN-13: 978-1941887028

The post Four Days With Kenny Tedford: Life Through the Eyes of a Child Trapped in a Partially Blind & Deaf Man’s Body By Paul Smith and Kenny Tedford Jr. appeared first on Good News!.

At twenty-one years old, Hope O Baker made one of the hardest decisions a person can make: she placed her son for adoption. She lived with her son’s adoptive mother while she was pregnant and pursued an open adoption. After her son was born, Hope tried to resume her life.

But the difficulty of letting her child go gnawed at Hope. Even though she had it together on the outside—graduating college and excelling in her career—on the inside she was battling a destructive cycle of depression and addiction. When life was at its darkest, Hope managed to find her way back to the light. It’s a journey she continues to this day.

Now, in this love letter to her son, Hope shows how messy and chaotically beautiful adoption can be, by sharing the authentic details of her remarkable story. From her struggles, you’ll see how the community can help you rebuild and be reminded of how important it is to find your voice and speak up for what you need when life hands you unexpected difficulties.

Hope will grip your audience’s attention no matter what stage or type of parenting experience they’ve had. There are many relatable moments that can dispense needed wisdom to new parents, and get knowing nods from those who have had kids and been through the journey of parenthood and now have an empty nest. The amount of value here and the nuggets one can take away are numerous, and each time she speaks, you can find new “ah-ha” moments to grab onto. Hope has been through some very rough emotional turmoil, made some agonizing decisions, and has come through the fire to let us know that she has found her namesake as she emerged from places where she almost lost it.

About the Author:
After placing her newborn son for adoption in 2013, Hope O Baker struggled with depression, addiction, and overcoming the stigma that surrounds birthmothers. In her first book, Finding Hope: A Birthmother’s Journey Into the Light, she shares her story of a successful, open adoption—and all the heartache and light that came along the way. Hope is a passionate advocate for those on all sides of adoption. You can find her online at HopeOBaker.com or follow her on Instagram at @HopeOBaker. Hope visits her son regularly and is a passionate advocate for those on all sides of adoption. You can find Hope online @ hopeobaker.com or follow her on IG, Facebook, Twitter, and Linkedin

#hope #baker #finding #birthmothers #journey #light #lioncrest #adoption #relationships #decision #child #voice #deserve #emotional #emotion #trauma #struggles #addiction #depression #alone #empowering #women #right #choice #situations #support #afterward #birth #parenting #passionate #hopeobaker

The post Finding Hope: A Birthmother’s Journey into the Light by Hope O Baker appeared first on Good News!.

The post Enjoy your child while they live with you, as soon they move on…… appeared first on Good News!.

The post Are you willing to be a child again and skate onto the RINK OF LOVE? appeared first on Good News!.

How Innovative Health Tech Keeps Families Connected to Care
Managing chronic conditions like diabetes can be stressful
Learn how technology can help keep your mind and body healthy and connected to care

COVID-19 has many feeling stressed and isolated, exacerbating mental health challenges across the country. The CDC recently reported that more than two in five Americans struggle with mental or behavioral health issues due to the pandemic, with 31% noting symptoms of anxiety or depressive disorder.

Now, heading into a holiday season where many are foregoing traditional gatherings, the space between us can feel even more expansive – particularly for children and families managing diabetes. A survey by Opinion Health and supported by Abbott exploring the emotional impact of diabetes on children and families found a diabetes diagnosis makes a child 73% more likely to be anxious than those without it and, nearly half of parents surveyed believed their child’s diabetes caused them to have mental health issues.

To add to this, more than 50% of people with diabetes who were diagnosed with COVID-19 have been hospitalized, highlighting the population’s higher risk for severe complications. Connected care has never been more important; advancements in health technology, paired with the uptick in telehealth, have been instrumental in helping people stay healthy, especially during the pandemic and
upcoming holiday season.

Continuous glucose monitors (CGMs) are one of the advancements helping people with diabetes manage their condition safely from home – leaving them one less thing to worry about in the current environment. This is particularly true for parents of children with diabetes who reported feeling a heavy emotional burden over managing their child’s condition. Access to wearable CGM technology
that eliminates the need for fingersticks plays a critical role in making it easier.

Larry Kurt Midyett, M.D., pediatric endocrinologist, Midwest Women’s and Children’s Specialty Group, to explore insights from the survey and learn how health technology is empowering families to manage challenges associated with diabetes throughout the pandemic and into the holiday season.

This interview is sponsored by Abbott.

https://oprmc.com/physicians/profile/Larry-K-Midyett-MD

#abbott #larry #kurt #midyett #holiday #pandemic #health #tech #family #care #covid #covid-19 #covid19 #chronic #conditions #diabetes #stress #cdc #struggle #glucose #monitors #child #mental #pediatric #endocrinologist #empower #season

The post Navigating the Holidays During a Pandemic: appeared first on Good News!.

A New Documentary

THE EMOTIONAL JOURNEY OF HOW A FAMILY

TURNED THE CHALLENGES OF THEIR TEENAGE SON’S RARE DISEASE INTO A MISSION FOR RAISING AWARENESS

Clinton Moore – a devoted father and tireless advocate for his son, who lives with a rare disease called cystinosis – is on a mission to help bring awareness to the condition that has affected his son’s life and impacted his family to its core.

In a new documentary that recently premiered, Moore describes when his son was first diagnosed with cystinosis, and how difficult it was to accept the doctor’s conclusion. A rare disease diagnosis wasn’t the answer he wanted, but he soon came to understand it.

Cystinosis is a rare genetic disease that results in an abnormal accumulation of the amino acid cystine in various organs and tissues of the body such as the kidneys, eyes, muscles, pancreas and brain. Symptoms usually appear early in a child’s first year of life, and it’s a lifelong disease. Cystine accumulation can lead to kidney failure, muscle wasting, swallowing difficulty, diabetes, and hypothyroidism, among other issues. Without treatment, children with cystinosis will usually develop end stage kidney failure or die prematurely.

Moore says since cystinosis never stops, so neither does he. In the film, he explains that giving up hope means you’ve completely given up, so he won’t allow that to happen. In a heartwarming moment in the film, Moore explains how amazed he is that his son has chosen to be as happy as he is each day, considering all his challenges. Part of his son’s daily routine includes a regimen of dozens of pills and eye drops every waking hour.

Moore has been doing all he can to bring attention to the disease. In the documentary, Moore can be seen completing a 57-mile walk within 24 hours, dedicated to bringing awareness and support to the cystinosis community.

He believes more awareness about the disease is crucial in helping to raise money for research and he won’t stop doing all he can until a cure is found. Moore’s passion has moved him from being a parent on the sideline not thinking he could make a difference, to the president of the Cystinosis research Network (CRN) the longest standing active non-profit supporting cystinosis families worldwide.

One in 10 Americans are affected by a rare disease, so it’s important to bring attention to the issues surrounding them. Also noteworthy is the fact that many treatments developed for rare diseases have been repurposed, which is the identification and application of already approved drugs to treat new diseases.

Clinton Moore, patient advocate and CRN president, will be available to talk about the documentary, the organization CRN, the disease and how to support those afflicted with the cystinosis.

The post Rare Disease Documentary – Goodnewsplanet.com – appeared first on Good News!.