hear Archives - Good News!

We Rise in Gratitude – World Zoom Event Thursday, November 13, 2025

Austin Tang — Tue, 11 Nov 2025 16:57:01 +0000

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Rare Disease Day is February 28thIT MAY BE AN “INVISIBLE ILLNESS” Yet One Major Symptom Remains Relentless Hear from Former NCAA All-American Hockey Player Who is Now a Hockey Coach

Austin Tang — Fri, 28 Feb 2025 19:00:23 +0000

Listen to “Rare Disease Day is February 28thIT MAY BE AN “INVISIBLE ILLNESS” Yet One Major Symptom Remains Relentless Hear from Former…” on Spreaker.

Primary sclerosing cholangitis (PSC) is a rare liver disease characterized by progressive inflammation and destruction of bile ducts, which may lead to fibrosis, cirrhosis, portal hypertension, specific cancers, and ultimately liver failure.1
PSC is estimated to affect 29,000 people in the United States and 236,000 people in Europe.2,3 Additionally, one in every 10,000 people worldwide is diagnosed with PSC.4 The median age at diagnosis is approximately 35 years, and approximately 70% of PSC patients have inflammatory bowel disease, principally ulcerative colitis.5,6
The cause of PSC is not completely understood but it is thought to stem from genetic as well as environmental factors. A significant symptom of PSC, 91% of patients suffer from a severe and unrelenting itch, clinically referred to as pruritus, which can deeply impact a person and their quality of life.7
As a former NCAA All-American Hockey Player, and three-time national champion with the University of Minnesota Duluth, Julianne Vasichek was at the top of her game when she was unexpectedly diagnosed with PSC. Although she had been experiencing unexplained symptoms for some time, including relentless itch, fatigue and abdominal pain, she never imagined the cause was a rare and debilitating disease.
Julianne spent the next seven years managing her disease and staying as active and healthy as possible. Due to the lack of effective treatments to manage her PSC, she underwent an emergency liver transplant. She has found that sharing her story, connecting with others, and spreading awareness bolstered her spirit and gave her a renewed sense of purpose. Drawing on her own experience, Julianne actively engages with other patients while advocating for increased research and PSC community connectivity. Julianne is thriving and is currently the Head Women’s Coach at the College of St. Scholastica in Minnesota.
There is a void of effective therapies for rare cholestatic liver diseases, such as PSC. However, with current ongoing research, there may be options in the future to combat the relentless itch that PSC patients experience other than a transplant.
Join Julianne and internationally trained hepatologist Gideon Hirschfield, FRCP, PhD, as they discuss PSC in an effort to raise awareness about the disease.

Courtesy: Mirum Pharmaceuticals, Inc

#pspartners #mirum

The post Rare Disease Day is February 28thIT MAY BE AN “INVISIBLE ILLNESS” Yet One Major Symptom Remains Relentless Hear from Former NCAA All-American Hockey Player Who is Now a Hockey Coach appeared first on Good News!.

Tis’ the Season & the Reason…to Spread Christmas Cheer for All NYC to Hear!!

Austin Tang — Thu, 19 Dec 2024 18:21:14 +0000

Happy Holidays to All, May Everything Bring Peace & Love to Everyone. Join Joe, Emma, Chris n Everyone else on Saturday, in Chinatown, NY Columbus Park, Mulberry n Worth Street at 11 am. Or Angelina Bakery, on Sunday, 7 Times Square, 41st Street & Broadway, NYC. Celebrating Toys-for-Tots…All the Best to Everyone, especially the Girls & Boys!!

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Thought For The Day…

Austin Tang — Tue, 22 Jun 2021 17:00:53 +0000

KINDNESS IS A LANGUAGE

THAT THE DEAF CAN HEAR

AND THE BLIND CAN SEE.

Happy Morning

#kindness #language #deaf #hear #blind #see #happy #morning

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Hear Robert Siegel & Breast Cancer Experts 10/28 @4 pm ET

Austin Tang — Sun, 18 Oct 2020 16:46:38 +0000

REGISTER HERE FOR NOVEMBER 17

American Friends of Rabin Medical Center (AFRMC) is a 501 (c) (3) nonprofit charitable organization that was established in 1995. Through a variety of programs and fundraisers across the United States, the funds raised by American Friends of Rabin Medical Center benefit AFRMC in furtherance of its mission to fund charitable, educational and scientific purposes at Rabin Medical Center. A portion of all funds raised are used for AFRMC operations. Israel’s Rabin Medical Center in Petach Tikvah, named after former Prime Minister Yitzhak Rabin, is the pride of Israel, serving the needs of one million patients annually without regard to ethnicity, nationality or religion.

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American Friends of Rabin Medical Center
636 Broadway, Ste. 618, New York, NY 10012

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NYTimes: Mitch Landrieu Reminds Us That Eloquence Still Exists

admin — Fri, 26 May 2017 14:45:51 +0000

So beautiful – thank you for sending Tina! I particularly appreciated this bit:

“We subsist now on a meager vocabulary of winners and “losers,” of “sad!” naysayers and “nut job” adversaries. We’re asked to see an absence of eloquence as the presence of authenticity. But that’s bunk. Words, like monuments, matter.”

Love,
Liz

With Memorial Day around the corner a friend from Juilliard and world class musician sent email with the enclosed article. It brought tears to my eyes.

Sincerest thank you for all that you do to make the world a better place.

B. Tina Ebey

https://www.nytimes.com/2017/05/23/opinion/mitch-landrieu-new-orleans-mayor-speech.html?smprod=nytcore-iphone&smid=nytcore-iphone-share

The mayor of New Orleans just gave a speech on race and history that you need to hear.

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Giving Gifts to Homeless Children

admin — Wed, 14 Dec 2016 17:00:27 +0000

For 15 years HAI a nonprofit has been helping children living in temporarily housing in the five boros of New York. Hear from Angels and please join us at Hard Rock Cafe in Times square on Saturday December 17th at 8am to 10am. Toys’ For Tots gave toys, Hugg a Planet gave globes and so many more shared their respect with toys, books, wrapping, donations with the organization. Go to www.gofundme.com/FriendsofAkanke

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Sigourney Weaver, What’s Peace Mean to Her?

admin — Fri, 17 Oct 2014 18:06:42 +0000

Listen to Her And Hear What She Says About Peace…

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Ralph McDaniels Wants to Hear From Young People

admin — Thu, 08 May 2014 18:43:16 +0000

http://www.bet.com/news/music/2014/04/12/ralph-mcdaniels-wants-to-hear-from-young-people.html

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Siemens’ Newest Hearing Aid Platform Delivers a Natural, Uncompromised Listening Experience

admin — Tue, 09 Jul 2013 15:12:33 +0000

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