HELPING FAMILIES IMPACTED BY BREAST CANCER FIND MAGIC WITH “THE ADVENTURE JAR”

Austin Tang — Tue, 08 Oct 2024 20:12:03 +0000

Listen to “HELPING FAMILIES IMPACTED BY BREAST CANCER FIND MAGIC WITH “THE ADVENTURE JAR”” on Spreaker.

A new children’s book is being released to help families impacted by breast cancer.

“The Adventure Jar: A Story of Magic for Families Living with Metastatic Breast Cancer” is intended for children ages three to eight. The book follows the story of a family affected by metastatic breast cancer as they discover that even through the challenges of their mom’s diagnosis – involving inevitable change, uncertainty and disappointment – there is magic to be found in time shared together.

Family life can be upended when a parent has cancer, and it can be difficult for parents to bear witness to the impact it can have on young children – creating a crucial need for resources to help navigate the challenging emotions that follow.

The Adventure Jar, led by Gilead Sciences, was created in collaboration with eight diverse members of the metastatic breast cancer (MBC) community and professionals, including a psychiatrist, to help families impacted by MBC.

Among these collaborators is Gilead Patient Ambassador Lauren Huffmaster. She was diagnosed with MBC at 37 years old and struggled with the emotional impact cancer had on her husband and three young daughters, who were two, four and six at the time. Nearly a decade since her diagnosis, MBC continues to shape the lives of her daughters, but they’ve made it a habit to redefine their circumstances.

Breast cancer is the most commonly diagnosed cancer and leading cause of cancer death among women aged 20 to 49 years in the US[ Siegel, R. L., Miller, K. D., Wagle, N. S., & Jemal, A. (2023). Cancer statistics, 2023. CA: A Cancer Journal for Clinicians, 73(1), 17–48. https://doi.org/10.3322/caac.21763.

MBC is the most advanced stage of breast cancer that has spread to other areas of the body, most often the bones, lungs, liver or brain.[ Metastatic Breast Cancer Facts and Statistics. (n.d.). Susan G. Komen®. Retrieved June 14, 2024, from https://www.komen.org/breast-cancer/facts-statistics/what-is-breast-cancer/metastatic-breast-cancer/ It’s a lifelong disease, and treatment is an ongoing reality that doesn’t go away for most people. As younger women are being diagnosed with MBC at an alarming rate, this means that families, including many young children, are increasingly impacted.

#adventurejar #cancer #breastcancer

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CEO of the National Coalition for Cancer Survivorship (NCCS), Shelley Fuld Nasso along with Justin Birckbichler Cancer Survivor

Austin Tang — Wed, 18 Dec 2019 14:41:59 +0000

http://goodnewsplanet.com/wp-content/uploads/2019/12/cancer_survivorship_1.mp3
Justin Birckbichler (Berk-bick-ler) to discuss why he got involved in Survivorship Today, as well as his personal experience dealing with the triumphs and challenges of life with cancer. Joining Justin will be Shelley Fuld Nasso (FoldNas-So), CEO of the National Coalition for Cancer Survivorship (NCCS), who can discuss the latest research on the long-term impacts of cancer and ways to better support survivors’ needs. Website: SurvivorshipToday.com
MOST OF US KNOW SOMEONE WITH CANCER. THANKS TO ADVANCES IN RESEARCH, THERE ARE NEARLY 17 MILLION CANCER SURVIVORS IN THE U.S. TODAY, AND NEARLY HALF OF THEM HAVE SURVIVED 10 OR MORE YEARS SINCE THEIR DIAGNOSIS. HOWEVER, MANY STILL FEEL UNCERTAIN ABOUT THE FUTURE AS THEY COPE WITH THE MENTAL, EMOTIONAL AND PHYSICAL EFFECTS OF THE DISEASE.
A PROGRAM CALLED SURVIVORSHIP TODAY: WHAT IT’S LIKE TO LIVE WITH CANCER AIMS TO HELP PEOPLE UNDERSTAND THE REALITIES THAT PEOPLE AFFECTED BY CANCER FACE EACH DAY. ACTOR STERLING K. BROWN IS NARRATING THIS SERIES BY BRISTOL-MYERS SQUIBB, WHICH TELLS THE STORIES OF CANCER SURVIVORS ACROSS THE COUNTRY.
JOINING US NOW ARE SHELLEYFULD NASSO, CEO OF THE NATIONAL COALITION FOR CANCER SURVIVORSHIP, AND JUSTIN BIRCKBICHLER, A 28-YEAR OLD SURVIVOR FEATURED IN THIS SERIES.
We learned about.
• Justin, what is the Survivorship Today program and why was it important for you to get involved?
• Shelley, when your organization was founded, cancer survivorship was a new concept, and in many ways it still is. How has cancer survivorship and care changed over the past 10 years?
• Justin, as someone who has been through it, what do you wish people knew about life after a cancer diagnosis?
• Shelley, what can each of us do to provide more support for people living with cancer?
• Justin, where can people go for more information and support?
Shelley Fuld Nasso, Chief Executive Officer
The National Coalition for Cancer Survivorship (NCCS)
As Chief Executive Officer,Shelley Fuld Nasso leads the public policy activities of NCCS at a time of rapid and fundamental health care system change. Shelley joined NCCS in 2013.
Prior to joining NCCS,Shelley served in leadership roles at Susan G. Komen, where she leveraged Komen’s grassroots network in Washington, D.C., and in state capitals. She is a graduate of Rice University and holds a Master of Public Policy from the Harvard Kennedy School.
Shelley’s commitment to the work of NCCS is strongly tied to the experiences in the cancer care system of her dear friend, Dr. Brent Whitworth, a beloved physician who was diagnosed with stage IV cancer days before his 42nd birthday and who passed away 19 months later. Through Brent’s experiences, Shelley witnessed the strengths and flaws of the cancer care system and embraces the notion that policy change can make cancer care better for patients and caregivers.
Shelley and her husband Michael live in Maryland and are the parents of three boys.

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HELPING FAMILIES IMPACTED BY BREAST CANCER FIND MAGIC WITH “THE ADVENTURE JAR”

CEO of the National Coalition for Cancer Survivorship (NCCS), Shelley Fuld Nasso along with Justin Birckbichler Cancer Survivor