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MS Awareness Month in March NEW OPTION FOR MANAGING MULTIPLE SCLEROSIS

Austin Tang — Wed, 19 Feb 2025 18:21:35 +0000

Listen to “MS Awareness Month in March NEW OPTION FOR MANAGING MULTIPLE SCLEROSIS” on Spreaker.

A Chronic Disease of the Central Nervous System
March is Multiple Sclerosis (MS) Awareness Month, a key moment in time to raise awareness of the disease, educate the public and support those living with MS by sharing their stories.
MS is a chronic and disabling disease of the central nervous system (CNS)1 impacting nearly one million people in the U.S., with varying forms including primary progressive, secondary progressive and relapsing-remitting MS, among others. The CNS includes the brain, spinal cord and optic nerves and controls everything we do. MS causes progressive and irreparable damage to the CNS, disrupting the flow of information within the brain, and between the brain and body.
A person’s experience with MS can change from day to day and year to year. MS can also affect different areas of the body as symptoms depend on where damage is occurring at any specific time.2 Specific symptoms may include3:
· Fatigue
· Difficulty walking
· Vision difficulties
· Memory difficulties
· Numbness
· Pain
· Tingling, and many more unseen symptoms

Over 60 million Americans, about one-fifth of the U.S. population, live in areas where access to healthcare, including IV administration, is often limited. This particularly poses challenges for people with chronic diseases like MS.
Roger was diagnosed with MS when he was 36, and experienced symptoms including migraines, vision loss and leg pain.
However, he has been able to manage his MS thanks in part to a newly approved treatment by the U.S. Food and Drug Administration (FDA).
The treatment is the first and only twice-a-year, 10-minute subcutaneous injection for certain types of MS and provides a new and much needed option for people living with the disease, particularly those who need flexibility in the route of administration or treatment time.
Dr. Robert Shin, Director of the Multiple Sclerosis and Clinical Neuroimmunology Division at UVA Health, is available to discuss the importance of this treatment for MS and will explain how it provides additional choice and flexibility for both healthcare providers and people living with the disease. Roger will also be joining Dr. Shin to talk about his experience with MS and how this treatment option has helped him manage his disease.

Interview is courtesy of Genentech

#ms #managingms #multiplesclerosis #msawarenessmonth #msawareness

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New & Easier Way to Manage Diabetes-Eliminates Daily Injections

Austin Tang — Mon, 28 Oct 2024 20:36:00 +0000

Listen to “New & Easier Way to Manage Diabetes-Eliminates Daily Injections” on Spreaker.

A NEW WAY TO MANAGE TYPE 2 DIABETES THAT ELIMINATES INSULIN INJECTIONS FOR MILLIONS OF AMERICANS
Diabetes management has taken a significant step forward following FDA clearance of the Omnipod 5 Automated Insulin Delivery (AID) System, for adults 18+ living with type 2 diabetes, making it the first and only AID system cleared for the treatment of both type 1 and type 2 diabetes.

Over 30 million Americans live with type 2 diabetes in the United States, with approximately 6 million people who require insulin, of which 2.5 million are using multiple daily injections (MDI). Despite advances in medical therapy over the past 20 years, there has been no significant change in the percentage of adults with type 2 diabetes achieving recommended HbA1c targets.

This clearance is a FIRST in type 2 diabetes management as it:

replaces the exhausting daily routine of multiple daily injections (MDI) with a discreet, tubeless, waterproof5, and wearable “Pod” ― about half the size of a credit card ― which provides continuous insulin delivery for up to 3 days (72 hours)

proactively helps correct for highs ― and helps protect against lows ― both day and night

communicates with a compatible continuous glucose monitor (CGM)

automatically adjusts insulin delivery every 5 minutes using the CGM value and trend

has shown improvements in patient-reported diabetes related distress

Omnipod 5 is a first-of-its-kind, simplified and effective option for people with type 1 and type 2 diabetes, providing freedom from multiple daily injections.
Dr. Trang Ly, Senior Vice President and Chief Medical Officer, Insulet Corporation, will be available to discuss the new automated insulin delivery system for type 2 diabetes and the profound patient impact.
Interview courtesy: Insulet Corporation

#diabetes #dailyinjections #drtrangly #omnipod

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March is Myeloma Action Month A NEW MULTIPLE MYELOMA (MM) CAMPAIGN “MM Told True” BRINGS PATIENT STORIES TO LIFE THROUGH ART

Austin Tang — Tue, 07 Mar 2023 13:41:35 +0000

Listen to “March is Myeloma Action Month A NEW MULTIPLE MYELOMA (MM) CAMPAIGN “MM Told True” BRINGS PATIENT STORIES TO LIFE THROUGH ART” on Spreaker.

https://mam.myeloma.org/
“Living looks like still dreaming. A refusal to let cancer suffocate you while you’re still breathing,” wrote prominent spoken word artist Jae Nichelle as part of the new MM Told True campaign.

Designed to empower people with multiple myeloma (MM), MM Told True highlights the stories of those with the disease, bringing them to the forefront through spoken or visual art. In her thought-provoking poem, Jae tells the story of Oya – a committed father, podcaster, aspiring musician and advocate for health equity in the Black community – who was diagnosed with MM in 2017, despite difficulty having his concerns taken seriously.

Since his diagnosis, Oya has become an outspoken member of the MM community, with the hope that others will reach a quicker diagnosis and feel supported through treatment.

MM is a currently incurable cancer of plasma cells in the bone marrow with over 34,000 new cases estimated to be diagnosed in 2023. Even with treatment, the disease tends to relapse – meaning symptoms come back after temporarily improving – or progress.

Patients report feeling like they’re inside a maze, as promising treatment paths repeatedly hit a wall. MM disproportionately impacts ethnic and racial minority groups in incidence, onset and outcome, with Black patients twice as likely to die from the disease compared with white patients.

MM Told True not only illustrates patient stories, but also provides tools and information about MM – so people living with the disease can feel educated and empowered against this relentless blood cancer.

The next phase of the campaign involves encouraging others affected by MM to share their unique stories on MMToldTrue.com, whether it comes in the form of a personal photo, a powerful message or something else that expresses how they feel. These lived experiences can serve as inspiration for people with MM and their care partners.

On March 2, Oya and Jae will be available to discuss how they came together to create meaningful art from Oya’s story, his experience living with MM, and how others can share their own stories and find support through the MM Told True website.
Interview courtesy: Pfizer Inc.

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AN OFTEN INVISIBLE BUT DEBILITATING SYMPTOM OF MULTIPLE SCLEROSIS

Austin Tang — Fri, 19 Feb 2021 15:57:18 +0000

Listen to “AN OFTEN INVISIBLE BUT DEBILITATING SYMPTOM OF MULTIPLE SCLEROSIS” on Spreaker.

http://goodnewsplanet.com/wp-content/uploads/2021/02/multiple_sclerosis_2.mp3

Hear from Azure Antoinette, the “Maya Angelou of the Millennial Generation,” …
On Living Well with MS for Black Americans. https://www.moretoms.com/

Azure Antoinette is a commissioned poet, entrepreneur and arts education advocate. She has been living with multiple sclerosis (MS) for over a decade. Azure will be joined by Board-Certified Neurologist and world-renowned MS Specialist Dr. Mitzi Joi Williams, who is an advocate for living well with MS, especially for Black Americans, who may be more at risk for MS than previously thought.

Azure was diagnosed with relapsing-remitting multiple sclerosis (RRMS) at age 28. In her early twenties, she began having spasms, tingling in her hands and feet, and had trouble walking. She felt so tired that it was difficult to stay awake, to watch a movie or drive a car, even after sleeping for 16 hours some nights.

The fatigue experienced by MS patients is much different from an everyday tired feeling, and it can come on with no warning. Managing MS fatigue is an ongoing challenge because it isn’t a one-size-fits-all symptom.

Just ask Dr. Williams, who partners with patients to create personalized treatment plans for their distinctive MS experiences, including:
 Feeling excessively tired or weary
 Having trouble with memory or mental focus
 Experiencing muscle weakness or trouble with coordination

In a public service announcement (PSA) launching in February, Azure encourages Black Americans living with MS to pay attention to their symptoms and advocate for their health. She also shares her first-hand experience as a Black woman living well with MS in a documentary alongside Dr. Williams, who explains what symptoms to watch out for and advice on staying active while managing often overwhelming MS symptoms.

MS is an autoimmune disease where the body attacks itself, making it difficult for the brain to communicate with the rest of the body.2 Approximately one million adults live with MS in the U.S., a majority of whom are diagnosed with RRMS. Women are three times more likely than men to develop RRMS, and Black Americans have an increased risk of developing progressive symptoms.2

Azure and Dr. Williams discuss the upcoming PSA and documentary launch – in time for Black History Month in February and MS Awareness Month in March – and More to MS, an educational resource to help patients and their caregivers learn more about and better manage MS symptoms like fatigue.

Interview courtesy: Janssen

References
1 The National Multiple Sclerosis Society. Fatigue. https://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms/Fatigue. Accessed January 2021.
2 Multiple Sclerosis Association of America. Who Gets Multiple Sclerosis. https://mymsaa.org/ms-information/overview/who-gets-ms/. Accessed December 2020.

#multiple #sclerosis #mitzi #joi #azure #antoinette #williams #maya #angelou #millennial #generation #ms #living #well #americans #moretoms #poet #entrepreneur #arts #education #fatigue #spasms #tingling #awake #feet #hands #tired #mental #focus #weak #coordination #muscle

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THE DESIRE CARD, THE MENTOR, and SLOW DOWN

Austin Tang — Fri, 09 Oct 2020 17:11:23 +0000

http://goodnewsplanet.com/wp-content/uploads/2020/10/lee_matthew_goldberg_1.mp3
Lee Matthew Goldberg is the author of the novels THE DESIRE CARD, THE MENTOR, and SLOW DOWN. He has been published in multiple languages and nominated for the 2018 Prix du Polar. His Alaskan Gold Rush novel THE ANCESTOR is forthcoming in 2020. He is the editor-in-chief and co-founder of Fringe, dedicated to publishing fiction that’s outside-of-the-box.

His pilots and screenplays have been finalists in Script Pipeline, Book Pipeline, Stage 32, We Screenplay, the New York Screenplay, Screen craft and the Hollywood Screenplay contests. After graduating with an MFA from the New School, his writing has also appeared in the anthology DIRTY BOULEVARD, The Millions, Cagibi, The Montreal Review, The Adirondack Review, The New PlainsReview, Underwood Press, Monologing and others. He is the co-curator of The Guerrilla Lit Reading Series and lives in New York City. Follow him at leematthewgoldberg.com

#lee #matthew #goldberg #author #novels #novel #desire #card #mentor #slow #down #published #multiple #languages #nominated #2018 #prix #du #polar #alaskan #gold #rush #ancestor #forthcoming #2020 #editor-in-chief #editor #in #chief #founder #fringe #dedicated #publishing #fiction #outside #of #the #box #outside-of-the-box #pilots #screenplays #finalists #script #pipeline #stage #32 #screenplay #contests #graduating #mfa #new #school #writing #anthology #dirty #boulevard #millions #cagibi #montreal #review #adirondack #plainsreview #underwood #press #monologing #curator #guerrilla #lit #reading #series #lives #nyc #york #city #leematthewgoldberg

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THE MILLENNIAL GENERATION EMBRACES WELLNESS, BUT HOW DO THEY DEAL WITH SERIOUS CHRONIC DISEASES?

Austin Tang — Mon, 09 Dec 2019 20:12:25 +0000

http://goodnewsplanet.com/wp-content/uploads/2019/12/multiple_sclerosis_1.mp3
Many Millennial-aged People with Multiple Sclerosis Put Their Own Health Challenges on the Back Burner, Not Fully Understanding the Implications of Proactively Managing their Condition
It’s no secret that the millennial generation embraces wellness and has helped bring health-mindedness to the forefront of pop culture today. But when it comes to taking care of more serious health challenges, many experts are noticing people in their 20’s or 30’s are approaching healthcare differently and often prioritizing “living their best lives” over thinking about their health.
For younger people with serious health issues, putting off talking to a doctor or not getting on an effective therapy after the diagnosis of a chronic disease can have irreversible implications in the long-term. This is especially true with chronic conditions like multiple sclerosis (MS), the most common debilitating, progressive disease, which affects one million U.S. adults – striking in the “prime of life” when people are starting careers and families, and eventually leading to irreversible physical disability for many people. With the average age of onset at 34, most people newly diagnosed with MS over the next 10 to 15 years will be millennial-aged people (ages ~22-39).
According to the National MS Society many people newly diagnosed with MS react with shock and denial, often leading to them not taking proactive steps to manage their disease or connect with the broader MS community. It is important for millennial-aged people to be proactive in their care and pursue early treatment to slow disability progression as they are at an age and point in their disease when a disease-modifying therapy may offer greater impact.
Channing Barker, a millennial-aged person living with MS, who will shed light on her experience of living with MS and working with her doctor to take control of her health. Anne Gilbert, Director of Programs at Can Do MS, a national MS advocacy group known for their work with younger people living with MS, will also share her perspectives on the need to better connect with and support this younger generation of people living with MS.
When you book, we’ll provide you with guest bio & list of suggested questions. Interview courtesy: Genentech

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6,000 expected to Walk MS New York City to raise funds for multiple sclerosis research

admin — Fri, 15 Apr 2016 19:05:52 +0000

Attached for your coverage consideration, please find a media alert, press
release and pitch for our annual walk on Sunday, April 17, at Pier 26,
Manhattan, to raise awareness and funds to cure multiple sclerosis.

Please let me know if I can facilitate an interview with Tracy Swan, a
Macy’s executive who is living with MS and will be participating with her
team of 60 employees and friends.

Best,
Daphne Mack
Communications Manager
National MS Society,
New York City – Southern New York Chapter
733 Third Avenue
New York, NY 10017
212-453-3250
212-986-7981 (Fax)
http://www.msnyc.org/

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David Osmond – Our Voice in Song, using music to inspire youth with MS

admin — Tue, 05 May 2015 15:29:39 +0000

MUSIC ARTIST DAVID OSMOND TO VISIT ATLANTA TO KICK OFF
OUR VOICE IN SONG MULTI-CITY TOUR<\strong>

WHAT: David Osmond – music artist and relapsing multiple sclerosis (MS) patient advocate – will visit Atlanta as part of the launch of Our Voice in Song, a campaign by Novartis Pharmaceuticals Corporation that uses music and resources to help inspire people living with relapsing MS to become more active managers of their disease. While in town, David will also perform at a local MS awareness walk.

David – nephew of Donny and Marie and former contestant on American Idol will talk about his personal journey with relapsing MS and the turning points that made him better manage his disease. He can also talk about why he has chosen to work to empower those with relapsing MS to actively manage the disease and share tools and resources from the campaign to help them. David will also gladly do a live performance of his original song “I Can Do This,” which he wrote based on advice from his family when he was diagnosed.

A physician will also be available for interviews to discuss questions related to relapsing MS, including how things have changed for the community and the importance of being your own advocate.

WHY: MS, an unpredictable, chronic disease of the central nervous system often diagnosed during the prime of one’s life, affects about 400,000 Americans and can lead to disability

Through Our Voice in Song, Novartis Pharmaceuticals Corporation and David hope to inspire people living with relapsing MS to raise their voices and become their own advocates in managing the disease.

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