JUST IN TIME FOR WORLD FTD AWARENESS WEEK, WE’RE JOINED TODAY BY DEB, WHO HAS BEEN A CAREGIVER TO SOMEONE WITH F-T-D, AND DR. TIFFANY CHOW, VICE PRESIDENT OF CLINICAL DEVELOPMENT AT ALECTOR AND A NEUROLOGIST EXPERT IN DEMENTIA.

BIO-About Dr. Tiffany Chow
Dr. Tiffany Chow is a Vice President, Clinical Development, Neurology at Alector. She is the author of Canadian bestseller, The Memory Clinic, a comprehensive and ultimately reassuring work about the prevention and management of dementia. She has spent most of her career as a Behavioral Neurologist working with patients and families living with dementias and supporting clinical trials for these illnesses.
Prior to joining Alector, Dr. Chow was a Senior Medical Strategy Director (Central Nervous System) at IQVIA, where she engaged with sponsors developing therapeutics for dementia, multiple sclerosis, myasthenia gravis, Duchenne’s muscular dystrophy, and migraine.
Dr. Chow is also an Adjunct Professor at the University of Pennsylvania Department of Pathology and Laboratory Sciences. She has previously served as Neurology faculty for the University of Southern California, the University of Toronto, and the University of California at Los Angeles. She earned her MD from Rush

The post FOR CAREGIVERS OR RELATIVES WHO WATCH THE PROGRESSION OF A DISEASE CALLED FRONTO-TEMPORAL DEMENTIA, OR F-T-D, IN A FAMILY MEMBER, IT CAN FEEL LIKE A STRANGER HAS MOVED INTO THE HOUSEHOLD. appeared first on Good News!.

And that’s exactly what they’ve done. After researching potential treatment options Jordan and his family decided to enroll him into a clinical trial for a new treatment for patients with Duchenne muscular dystrophy. The family had so much hope that this could help their son.

Now, Jordan and his family are celebrating the success he’s had in the clinical trial for the treatment which was received Accelerated Approval by the FDA for Duchenne patients who have a specific mutation like Jordan. His mom says it’s been incredible to watch all the positive changes he’s been experiencing, during the four years since he’s been receiving the treatment. Jordan who is now 12-years old, says he tries to make every day the best day ever.

Jordan is one of an estimated 10,000 boys in the U.S. with this rare disease. Early signs of Duchenne include delayed ability to sit, stand or walk. Patients face increasing loss of mobility and by adolescence many require the use of a wheelchair. In teenage years patients begin experiencing problems with heart and lung function that leads to serious, life-threatening complications.

Laura McLinn talks about her son Jordan’s journey and how she and her family approach every day and never gave up hope. She’ll also discuss how she has become an advocate for helping others with Duchenne muscular dystrophy and will offer advice to other parents about options available that can help.

Interview courtesy: NS Pharma

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The post A REMARKABLE MOTHER FIGHTING FOR HER SON TO LIVE HIS BEST LIFE INSPIRES & HELPS OTHERS WITH A PROGRESSIVE RARE MUSCLE DISEASE appeared first on Good News!.

The post Celebrating Hope: One Patient’s Journey with a Rare, Debilitating Disease appeared first on Good News!.