Listen to “Trisomy 18, Edwards Syndrome Takes the Life or Baby Marita – Her Mom creates Marita Brings Life Foundation thin 2 ours with a max. Life…” on Spreaker.

Marita at 2 days old. We were told she was going to die within 2 ours with a max. Life expectancy of 2 days This was her at 2 days old, alive and kicking.

Where Do We Grieve?
when it is our safe place
that died.
How do we tell lungs
to breathe through the pain
when they’re mourning
the air itself. –
Bereaved mum, anonymous
Abstract
This research aims at examining parents’ healthcare experiences for children with Trisomy 13
and 18 across three countries in the EU and the US, with emphasis on cultural, social and
medical perspectives on their interaction with healthcare professionals. The study using
semi-structured interviews explores how parents and children are wronged systematically;
ways in which there can be a clear lack of communication, ethical dilemmas, and ways in
which children with Trisomy 13 and 18 are stereotyped regarding the treatment that they are
given. Going further into the principal outcomes, it is worth to note that the parents are
essential in demanding their childrens’ care, as they actively dispute the medical
professionals and fight for their children’s rights, if the latter face withdrawal of care, or even
active unconsented palliative care. Additionally, the research addresses how parents attempt
to strategize against these situations by forming parent support groups, both formally and
informally, that allow better access to better healthcare facilities. Moreover, there are the
further findings of the research – the research shows that there exist serious violations of
ethical principles such as the principle of informed consent, the criterion of proportionality
and human rights violations with regards to equal access of medical care for the disabled. The
research shows that there is a need to design and implement better and sensitive health care
practices that respect the views of families with T13/18. For example, it advocates for
increased understanding of profession and parent communication, increased support of family
members and more attention paid to discrimination against children with T13/18 in
healthcare. These findings advance the knowledge in the field of Medical Anthropology,
Disability Studies, and Genetic Counseling that can be useful in the future health care
practices and policies for the families of the children with genetic disorders.
Acknowledgements
This dissertation is dedicated to my daughter, Marita, who was born on July 31, 2018, and sadly passed away
on September 1, 2018. I may never know if she would have survived had she received the care typically afforded
to a child unaffected by a chromosomal anomaly. My daughter was denied even the most basic care, such as
water and food. I extend my deepest gratitude to those parents who have entrusted me with their stories and to
the children who have shared their profound joy and love for life with me. In particular, this dissertation is
especially dedicated to Febe, who tragically passed away, most likely unnecessarily, while I was in the process
of writing this dissertation. I also wish to thank everyone who supported me in various ways. Special thanks go
to Professor Jonathan Gross at DePaul University, Chicago, who never stopped believing in my work.
Preface
It’s January 25, 2018. I’m about to walk the dog, feeling good, when the phone rings and my obstetrician speaks
in an aggressive tone: “You haven’t looked up your NIPT (Non-Invasive Prenatal Testing) results!” I calmly
respond, “Yes, indeed,…” I try to explain that I decided not to look them up. Upon returning home, I felt I had
been somewhat pressured into this. She had said, “It’s good to test because you and your husband (“Who says I
am married?”, I remember thinking.), will be able to provide better care for your child in case it has a genetic
disorder like Down syndrome. You’re 38 years old, don’t you think it’s a good idea?” I had answered, “If this
test is meant to help me get better care for my baby… if I can use it to inform myself, and if it’s not going to be
used against me or my child or my family…I would like to do it.” Thus we proceeded.
“But will my child get better care?” I later wondered. “Why should I do a genetic test if any child is more than
welcome? Wasn’t I causing myself a lot of worries and difficulties by knowing, instead of enjoying the bliss of
not knowing? What would this knowledge and the accompanying stress do to my child?” The obstetrician told
me she wouldn’t look up the results, and I had trusted her. “It’s your own responsibility; I won’t do it for you,”
she said in a snarky tone, while handing me a post-it with a login and password. Today she calls me, seemingly
enraged, and I don’t get a chance to stop her. She interrupts me and continues shouting statistical facts through
the phone.
“Your child has a 43% chance of Edwards syndrome. It’s similar to Down syndrome but much worse. It comes
with curved legs and arms, rock-bottom feet,… It will never be able to walk or speak. It’s the worst possible
disability there is. When are you coming in?”
I sit down on the puppy’s crate. He keeps pulling at his leash, eager to go out, and doesn’t pay attention to my
phone conversation. Nature calls. I breathe deeply, trying to buy some time, and respond, “Why should I exactly
come in?” I notice a hint of irony in my voice—a tone I would later recognise in other parents’ voices, much
later, after my daughter had passed away and I finally connected with them.
The obstetrician sighs and exclaims, “YOU SHOULD COME IN FOR YOUR APPOINTMENT. THERE IS
NO TIME TO LOSE,” then continues, “You were already late,” this time in an accusatory tone. (“Being
pregnant is not being sick,” I remember thinking to myself. I was barely two months pregnant when I had
contacted her.) “Which appointment?” I ask. (“A 43% chance of Edwards syndrome?” What on earth does that
mean? “Is the baby going to be half disabled?”, I remember thinking while drifting away into cynicism.
Thoughts are racing through my head at this point.) Before I have a chance to ask for further clarifications, she
rambles on:
“…IN BELGIUM WE ABORT SUCH CHILDREN. YOU SHOULD COME IN FOR YOUR
APPOINTMENT!!”
I now understand what “your appointment” means when she explains her cultural understanding of the matter.
This was also my first encounter with a typical discursive practice around NIPT, abortion, and having a child
with a trisomy disorder. “Coming in for your appointment” clearly meant “in Belgium we abort such children”,
the “appointment” was the “abortion appointment,” and “aborting such children”, apparently a normal procedure
here.
Calmly and politely, I clarify my position: “Whether to abort my child or not is still a decision to be made by me
and me alone, in whichever country I live.” I am not necessarily pro-life, nor am I pro-abortion. However, I am a
feminist, and nobody decides over my body and the little foetus growing inside me but me.
My experience also has a personal component. Following the standard DSM definition, I could be seen as
disabled (cf. I am diagnosed on the autism spectrum). Yet, I strongly align with how autistic sociologist Judy
Singer described our neurological difference: we’re neurodivergent, not disabled. Strictly speaking, we’re not
even necessarily autistic in the negative sense of the word. I have other qualities, other capabilities. I know my
value, and I have equal rights. My future disabled child has equal rights too.
“My dog needs a walk. I’ll call you back later. Thank you so much for your call,” I manage to politely utter. As I
put down the phone, I feel an incredible sense of unsafety in and around my body. I tremble as I walk into the
woods behind the house. Walking through the forest, I listen to the sounds around me, while the dog happily
runs about. There seem to be no problems here… until I lose sight of him and find him standing on the ice of the
little lake. He’s looking at me with terrified eyes. I’m terrified too. What have I gotten myself into? We’re both
on thin ice… and I’ve made a huge mistake consenting with this NIPT.
While helping the dog out of his precarious situation, I somehow come to terms with what just happened. The
doctor, whom I had confided in, had literally pulled the rug out from under me. Weren’t these results supposed
to be used to “improve and provide better healthcare for my child in case she would have a genetic disorder?” I
wasn’t even thinking about how she had looked up my results while saying she wouldn’t. It didn’t sit well with
me that now, all of a sudden, “better healthcare” was being translated into a—supposedly, if I could believe
her—national procedure to abort “such children.” How trustworthy was this NIPT actually? I wanted to run, as
far away as I could. This wasn’t really happening… THIS WAS NOT GOING TO HAPPEN TO ME, TO
US… At that moment, I even thought I could escape from it.
I walked, almost ran back to the house. I felt so small, so vulnerable, so full of adrenaline… I’m back at the
house and call the hospital: “I am calling in reference to my earlier conversation with Dr. X, you might know
about it?” “Yes”, mumbles the nurse. “I am calling to say I am withdrawing consent in sharing my and my
daughter’s medical files with any other hospital, including my GP.” The nurse responded: “This is not how
things work over here, maybe it’s different in the Netherlands.” (I have a Dutch accent.) “Yes this is how things
work over here,” I respond firmly, “I live here. I was born and raised here and I am aware of my rights. I do have
a right to medical confidentiality as any other person does. This right applies to my and my child’s medical files.
Also in Belgium. So again, I am asking you to clearly include in my medical files and those of my child, that
there is no consent to share them with anyone. Also not my GP. Please can you make sure to have a copy
available? I’d like to pick it up as soon as possible. I’ll drop by in 30 minutes. If it’s not ready, I’ll wait.”
An hour later, files in hand, I find myself buying a newspaper in the city centre. I need something to ground
myself in reality. But while reading the newspaper, I can’t stop thinking: “This is not my world anymore.
Nothing in this newspaper relates to me. I am here, you are all there. I’m in a different world. I’m falling into an
abyss that you all don’t know about. What is happening to me…?” Then the phone rings. My GP: “I just had a
call and heard you picked up your files from the hospital?” “There is no consent to share my files.” At this point
I feel I am getting angry. My patience is gone. “Yes, I know,” she rambles on, but I am barely able to receive
what she says, and feel myself sinking away, deeper and deeper, until I hear: “But don’t you think that if the
doctor advises you to abort, it would be wise to listen to her? Don’t you think the doctor knows better?”
That afternoon, I contact my former GP in the Netherlands and politely ask for a referral to the nearest Dutch
hospital. I am Dutch, live on the Dutch-Belgian border, and am insured in both countries (a luxury not everyone
has). I firmly believe that crossing the border, I would find a welcoming and nurturing environment—a place
where my possibly disabled child would be treated as an equal citizen. If I had only known.
Introduction
This dissertation explores the experiences of families of children with Trisomy 13 and 18
(T13/18), two severe genetic disorders, within the healthcare systems of three countries in the
European Union (Belgium, the Netherlands and Germany), as compared to experiences of
parents in the American healthcare system. The research investigates the extent to which the
differing views of parents and physicians regarding the care of children with these genetic
disorders influences parents’ experiences when they encounter negative eugenics.
Additionally, the study seeks to identify the culturally specific strategies that families employ
in response to these challenges. The study will compare parental experiences in the healthcare
systems of the US, characterised by a typical litigiousness and overwhelming fear of being
sued for medical malpractice, and these three countries in the EU, in order to understand how
modern-day eugenics is constituted in both the prenatal and postnatal context in these
Western societies.
A key aspect in the disability debate is the evaluation of the role of medicine in
defining disability in Western societies. As Foucault (1976, p. 252) argues, in biopolitical
states, ‘medicine becomes a political intervention-technique with specific power-effects.
Medicine is a form of power-knowledge that can be applied to both the body and the
population’. Similarly, Oliver (1990, Ch. 3) contends that the category of ‘disability’ is
socially constructed and fluid, able to resolve systemic contradictions within a given society.
Moreover, once certain groups are classified within this category, it becomes difficult, if not
impossible, for them to be excluded, creating a ‘distributive dilemma’ for states that can be
addressed in different ways depending on their mode of production. Oliver (1990, Ch. 3)
suggests that distribution based on needs may indicate the emergence of a socialist system,
while distribution based on costs may reflect a capitalist mode of production.
As Foucault argues, in its most extreme forms this ‘distributive dilemma’ manifests in
biopolitical societies in forms of ‘racism’. Foucault (1976, p. 255-259) argues that ‘racism’,
is ‘primarily a way of introducing a break into the domain of life that is under powers’
control: the break between what must live and what must die’. According to him, racism may
be seen as processes of stigmatisation, abandonment, rejection, expulsion and discrimination,
on the one hand. Or, on the other hand, as processes of killing or indirect killing…

The post Trisomy 18, Edwards Syndrome Takes the Life or Baby Marita – Her Mom creates Marita Brings Life Foundation thin 2 ours with a max. Life expectancy of 2 days This was her at 2 days old, alive and kicking. appeared first on Good News!.

“This book explores the joys of newfound love in old age, the miraculous blossoming that can occur when two lovers find each other after a lifetime of searching…The crystalline poems in The Kama Sutra for Senior Citizens are shot through with a gentle melancholy leavened by wit and eros.”

— Alison Luterman, Catamaran Poetry Prize Winner

“I love this book for its reassuring frankness, subtlety, and genial intelligence.… a mind so inventive, so alive to possibility, always at the heart of loving and delight… This book isn’t just for seniors, it’s for anyone who wants to feel what it is to be fully alive.”

— Tess Gallagher, Author of Midnight Lantern: New and Selected Poems

“These poems come to grips with the melancholy of aging set against the backdrop of love and sex, community and loneliness, laughter and tears.”

— Joseph Millar, Guggenheim and NEA Fellowship Recipient

What does love look like in life’s later chapters? In this tender, mischievous new collection of poetry, Zack Rogow answers with the hard-won wisdom of a man newly single in his senior years.

“After being with the same person for over three decades, I found my life upside down, dating again after the age of 65,” says Rogow, a teacher, playwright, poet, and translator. “I went on over 75 first dates and tried every-which-way to meet someone that I could feel a loving connection with. Luckily, I did, but it was not easy.” Rogow adds: “I didn’t succeed in finding a long-term partner by dating online. I finally met my current partner through our mutual interest in French literature. In an interview, he will share the following:

How he survived 75 first-time dates until he found a second chance at deep intimacy

The challenges and rewards of aging

What he discovered on the singles scene after not dating for 35 years

Why the three-time Pushcart Prize for Poetry nominee writes about love

ABOUT THE AUTHOR:
Zack Rogow is the author, editor or translator of more than 20 books and plays. Nominated three times for the Pushcart Prize for Poetry, his previous nine collections of poetry include Irreverent Litanies, Talking with the Radio: poems inspired by jazz and popular music, and The Number Before Infinity. His memoir, Hugging My Father’s Ghost, was released in 2024. Zack’s co-authored play, Colette Uncensored, had its first staged reading at the Kennedy Center in Washington DC, and later ran in London, Indonesia, Catalonia, San Francisco, and Portland. His blog, Advice for Writers, features more than 300 posts. He has received the PEN/Book-of-the-Month Club Translation Prize, the Northern California Book Reviewers Award in Translation, and the Celestine Award for Poetry. He also edited the anthology The Face of Poetry (University of California Press).

Additional career highlights include:

Bay Area Book Reviewers Association Award for translation of Horace by George Sand

Lili Fabilli-Eric Hoffer Essay Prize, UC Berkeley

Co-authored play Colette Uncensored, nominated for outstanding solo show by Theatre Bay Area, and co-authored play Groucho for President selected for JETFest, festival of new plays; staged reading

Taught at University of Anchorage and California College of the Arts

Contributing editor for Catamaran Literary Reader

Served as managing director of The Poetry Center at San Francisco State University

Wrote lyrics for several jazz songs, one of which was recorded by the chanteuse Carrie Wicks. Listen here: https://originarts.com/oa2/recordings/recording.php?TitleID=22175

His dad, Lee Rogow, was a widely published writer and man-about-town in Manhattan in the 1950s, before dying tragically in an airplane crash when he was three years old. Zack writes about this in his memoir, Hugging My Father’s Ghost.

Rogow earned his Master of Arts in English from City College and BA in English from Yale University, graduating Cum Laude. He resides in Northern California. For more information, visit www.zackrogow.com.

Social Media:

https://www.linkedin.com/in/zackrogow

X: @ZackRogow

Bluesky: Zackrogow.bsky.social

His blog is here: https://zackrogow.blogspot.com/

The post A Poetic Look at Love & Romance after Age 65 – the Power, Pleasure & Pain of Life as a Senior appeared first on Good News!.

The post Laughter shows PEACE appeared first on Good News!.

Dear Friends and Members,   NOTE: NEW www.pausetheworldforpeace.org website, check it out! 

Extra, Extra 2025 International Day of Peace & NYC Climate Week NEW POSTER is growing, as we just added a Peace Pole in the middle of the world. May Peace Prevail on Earth. We also have a NEW QR Code to go directly to our www.plantpeace.worldpeace.org page to plant your Virtual Peace Tree. Note: We are still tweaking the page. 

We will email you the poster and appreciation certificate for free, a SPECIAL INVITATION TO THE STEPS OF NYC CITY HALL on Friday September 19^th, for a HISTORIC RINGING OF THE PEACE BELL BY MAYOR ADAMS, HOLD SIGNS OF PEACE AND MOTHER EARTH, PRAY THAT OUR NYC SCHOOLS TAKE A MOMENT/MEDITATIVE MINUTE OF SILENCE FOR PEACE. Your tax-deductible donation to our UNITED Peace & Mother Earth Movement can surely help us pay for this very expensive production weekend. IMPORTANT NOTE: A few donor/sponsor opportunities are still available, and our goal is $19,000 in total, which is a tax-exempt deduction, for direct production expenses to create our NETWORK QUALITY LIVE CLEAN ENERGY BROADCASTS. 

WE ARE ALL IN THIS TOGETHER.

UN International Day of

Peace 2025,

September 21,

Expands to a Global Weekend To

Pause the World for Peace

Worldwide, Moment/Meditative

Minute of Silence, Plant Peace

Pole Virtually/Physical at Noon

in 24 Regions (Time Zones).

A World Cease Fire, Peace Acts,

Unity, Music, & Climate Week

Action. New York City Leads the

Call.

YOUR DOG MIGHT BE IN PAIN

Subtle Signs to Watch For & How

to Help September is Pain

Awareness Month

Lastly, if you care about your money, please tune in to WOR 710 Radio on Sunday at 10:30 AM. Here you can listen and call in to Legal Expert and Elder Care Lawyer, 14 Year NYS Representative and Dr. Phil, ET, Good Morning America…Guest Lawyer, Ann-Margaret Carrozza, ESQ. 

Ann is BRILLIANT, AND YOUR MONEY IS BRILLIANT, AND YOU ARE BRILLIANT IF YOU ARE SMART ENOUGH TO PROTECT IT.

Paul Sladkus is Ann’s Co-Host. Email me paul.sladkus1@gmail.com if you want me to ask her a question, or just call in (800-321-0710) and listen; it might be one of the most important programs in you and your family’s life.

Ann-Margaret Carrozza,

Asset Protection Lawyer,

WOR 710 AM

CALL IN Radio

LIVE Every

Sunday at 1030am

STAY WELL

LET’S GROW TOGETHER. GOOD NEWS MOTTO: “All we are is what we are with each other.” Zeal 

With Respect. Love and May Peace Prevail on Earth,  For Information Contact: 

Reverend Paul Sladkus, All Faiths and Spiritual,

Founder, Good News Corporation 501 C 3 212 647 1212 paul.sladkus1@gmail.com  and our Good News and Peace Worldwide Team who make our Peace Day 9/21 happen.

www.pausetheworldforpeace.org,www.goodnewsplanet.TV, www.youtube.com/goodnewsbroadcast

Social Networks: www.Facebook.com/PaulSladkus, LinkedIn Paul Sladkus, Twitter/X Good News to Go, Instagram PausetheWorld

LET’S GROW TOGETHER. GOOD NEWS MOTTO: ALL WE ARE IS WHAT WE ARE WITH EACH OTHER. ZEAL

For more information contact: 

Reverend Paul Sladkus, All Faiths and Spiritual 212 647 1212

New York, NY, Montauk, NY

PS – SPECIAL OPPORTUNITY FOR OUR FRIENDS AND MEMBERS: Looking for a vacation rental, SHORT TERM, in Montauk, this year and or entire summer in 2026, here is our listing https://pausetheworldforpeace.org/2025/04/16/36000-2br-one-of-a-kind-summer-rental-opportunty-historic-montauk-manor-montauk/  call me. Paul 917 687 1790

The post GoodNewsLetter: Labor Day Doesn’t Stop OUR PEACE EFFORTS, JOIN US…September 19, 20, 21….Moment/Meditative Minute of Silence for Peace & Plant Peace Pole, DOGS in PAIN? appeared first on Good News!.

DO YOU KNOW THE SIGNS OF OSTEOARTHRITIS (OA) IN DOGS? OA IS A CHRONIC AND PAINFUL JOINT DISEASE THAT CAN SEVERELY AFFECT YOUR DOG’S HEALTH AND HAPPINESS.

STUDIES SHOW 40% OF DOGS FEEL PAIN FROM OA, BUT ONLY ABOUT HALF GET DIAGNOSED.^[i],[ii]

FOR PAIN AWARENESS MONTH, VETERINARIAN DR. COURTNEY PIERCE, MEDICAL LEAD FOR CANINE PAIN AT ZOETIS (“ZOH-EHT-ISS”), IS HERE TO TALK ABOUT HOW OA AFFECTS DOGS, INCLUDING INSIGHTS FROM HER DOG ERNIE’S EXPERIENCE WITH THE DISEASE, HOW TO LOOK OUT FOR SIGNS OF OA PAIN AND AVAILABLE TREATMENT OPTIONS TO HELP CONTROL THE PAIN CAUSED BY OA.

[i] IHS Markit. (2021) Canine and Feline Pain Market 2021: Animal Health Market Analysis.​

[ii] Wright A, Amodie DM, Cernicchiaro N, et al. Identification of Canine Osteoarthritis Using an Owner-Reported Questionnaire and Treatment Monitoring Using Functional Mobility Tests. J Small Anim Pract. 2022;63(8):609-618.

BIO  

Dr. Courtney Pierce received an undergraduate degree in animal science and a Doctor of Veterinary Medicine from North Carolina State University. She earned her Master of Business Administration (MBA) from King University. She is a small animal general practitioner with special interests in surgery and pain management, feline medicine, and compassion fatigue prevention in veterinary health care workers. She is a certified as a “Cat Friendly Veterinarian” and Compassion Fatigue Profession (CCFP). Dr. Pierce lives on a small farm in Damascus, Virginia with her husband, two young boys, four rescue dogs, one orange cat, and several chickens.

Short:

Dr. Courtney Pierce is a small animal veterinarian with special interests in surgery and pain management and is the medical lead for canine pain at Zoetis. Dr. Pierce lives in Damascus, VA with her husband, two boys and a variety of companion and farm animals.

#dogs #drcourtneypearce #courtneypearce #veterinarian #medical

The post YOUR DOG MIGHT BE IN PAIN Subtle Signs to Watch For & How to Help September is Pain Awareness Month appeared first on Good News!.

During the Seder—while we talk of freedom throughout—the food we eat is the salt water of tears, the charoset of cement, and the maror of the bitterness of slavery.
Even in our moments of happiness, we also remember pain and loss and the challenges we endured to get us to where we are. The Seder is designed this way to make us think about the responsibility of what being free really means.
True joy comes from fully inhabiting our experiences, no matter how tough.
Reflecting on our challenges , no matter how hard, enhances our gratitude for present blessings. we don’t diminish our happiness when we spend a day or a few weeks meditating on the challenges we went through in order to emerge even stronger . We become more grateful, holding on tightly to our blessed lives because we can.
May this holiday season bring the understanding and appreciation that all  the challenges of life is a stepping stone for true Joy! And may you and your family only have true joy this holiday season and through out the year!
Blessings;
Marc

The post Happy Passover & Happy Holidays! appeared first on Good News!.

Over 60 million Americans, about one-fifth of the U.S. population, live in areas where access to healthcare, including IV administration, is often limited. This particularly poses challenges for people with chronic diseases like MS.
Roger was diagnosed with MS when he was 36, and experienced symptoms including migraines, vision loss and leg pain.
However, he has been able to manage his MS thanks in part to a newly approved treatment by the U.S. Food and Drug Administration (FDA).
The treatment is the first and only twice-a-year, 10-minute subcutaneous injection for certain types of MS and provides a new and much needed option for people living with the disease, particularly those who need flexibility in the route of administration or treatment time.
Dr. Robert Shin, Director of the Multiple Sclerosis and Clinical Neuroimmunology Division at UVA Health, is available to discuss the importance of this treatment for MS and will explain how it provides additional choice and flexibility for both healthcare providers and people living with the disease. Roger will also be joining Dr. Shin to talk about his experience with MS and how this treatment option has helped him manage his disease.

Interview is courtesy of Genentech

#ms #managingms #multiplesclerosis #msawarenessmonth #msawareness

The post MS Awareness Month in March NEW OPTION FOR MANAGING MULTIPLE SCLEROSIS appeared first on Good News!.

Although pain is one of the most common reasons that people visit the doctor, managing it can be complicated.

So, what’s a patient—or a doctor – to do?  Here to talk about the unmet need in treating acute pain is Dr. David Dalury, Professor of Orthopedic Surgery (Emeritus) at the University of Maryland.

vrtx.com 

The results show how patients’ lives are affected by acute pain:

70% say it limits them from walking and exercising.
69% says it limits their sleep.
65% says it affects their hobbies and leisure activities.
65% say it made them feel irritable or emotionally drained.
Patients reported missing an average of 19 working days annually.

Pain is one of the most common reasons that people visit the doctor; however, treatment options for the various types and causes of pain remain limited.i,ii,iii

Approximately 40 million Americans with acute pain are prescribed an opioid to manage their discomfort each year.vii Although opioids can be effective, they also carry a labeled risk of addiction.viii In fact, roughly 85,000 U.S. adults are expected to develop opioid use disorder (OUD) within a year of their prescribed treatment of acute pain.vii

Health care providers may prescribe either acetaminophen or nonsteroidal anti-inflammatory drugs (NSAIDs) as alternatives for milder pain or additions to opioids for severe acute pain; while these treatments are generally well tolerated, they may have limited effectiveness, particularly for moderate-to-severe acute pain.viii,ix

The survey also shows that:

77% of patients say they are interested in trying a different pain medication if they experience acute pain again.
52% say they are seeking a new pain medication with fewer side effects than their last medication.
31% say they stopped taking their medication before their pain was resolved.
On Wednesday, December 4th, Dr. David Dalury Professor of Orthopedic Surgery (Emeritus) at the University of Maryland will be available to discuss the survey results and help raise awareness about the unmet need in current pain management options and offer solutions.

Tell me about the State of Pain survey. What did it evaluate?​

Can you tell us some of the key findings? What did you learn? ​

Why is it important to focus on pain management right now? ​

Where can people learn more about the State of Pain survey?​

Interview is courtesy: Vertex Pharmaceuticals

#drdaviddalury #vertexpharmaceuticals #pain #orthopedicsurgery

The post NEW SURVEY ON PAIN SHOWS HOW IT DISRUPTS EVERYDAY LIFE & WHY THERE’S A NEED FOR ALTERNATIVE TREATMENTS appeared first on Good News!.

The post Supporting each other as we grieve for Israel appeared first on Good News!.

• WHAT: Imagine living with chronic pain that feels like hot coals burning in your skin and experiencing boils in some of your most intimate areas? For the estimated 1 in 100 people living with the debilitating skin condition called hidradenitis suppurativa (HS)*, it’s everyday life. “The Beacons: Illuminating HS Stories” will feature the stories of six people living with the condition, and how it impacts everything from their day to day life to relationships and beyond (you can watch the trailer here.) It is co-produced by advocate, journalist, and filmmaker Jasmine IVANNA Espy. The event will include a screening of the 30-minute film, followed by a panel discussion.
o About Hidradenitis suppurativa (HS): Hidradenitis suppurativa, or HS, is a condition that causes small, painful lumps to form under the skin, often where skin rubs together, such as the armpits, groin, buttocks, and breasts. The lumps heal slowly, recur, and can lead to tunnels under the skin and scarring. Once considered a rare condition, it is now thought that as many as 1 in 100 people are affected by HS.
o Those living with the condition struggle with more than their ability to feel confident, and it affects things like the ability to put clothes on, sit down, participate in their favorite hobbies, and pursue partnership and intimacy.

#jasmineivanna #producer #beacons #hidradenitissuppurativa #hs #filmmaker #illuminatinghsstories #skindisease #disfigure #painful #chronicpain

some more info, go to http://pausetheworldforpeace.org/2023/06/26/anthony-tony-yadao-vp-of-medical-affairs-for-immunology-novartis/

The post Documentary premiere at Tribeca Film Festival about 29-year old influencer, filmmaker and advocate Jasmine IVANNA Espy. She’s also the producer of “The Beacons: Illuminating HS Stories,” a new docuseries from Novartis that highlights her story and the stories of five other people living with hidradenitis suppurativa (HS) appeared first on Good News!.