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ADVANCING CARE FOR PEOPLE WITH HEMOPHILIA April 17, 2023 is World Hemophilia Day

Austin Tang — Fri, 07 Apr 2023 15:21:52 +0000

Listen to “ADVANCING CARE FOR PEOPLE WITH HEMOPHILIA April 17, 2023 is World Hemophilia Day” on Spreaker.

On World Hemophilia Day (April 17), the global bleeding disorders community unites to raise awareness and understanding of hemophilia, a rare bleeding disorder that impacts more than 30,000 Americans. This year’s theme is “Access for All: Prevention of bleeds as the global standard of care,” with a call-to-action to expand access to treatments that emphasize bleeding control and prevention and improve the quality of life for people with hemophilia.

Hemophilia A is a rare, lifelong condition in which a person’s blood does not clot properly due to a missing or defective factor VIII clotting protein. While hemophilia mainly impacts men, it can also affect females.

People living with hemophilia A can experience bleeding episodes during everyday activities, which can cause chronic pain and irreversible joint damage, and may impact their quality of life.

The severity of hemophilia is determined by “factor activity levels,” or the amount of clotting factor in the blood. People with lower factor activity levels have a greater risk of bleeds, while those with higher factor activity levels have better protection.

Recently, the FDA approved ALTUVIIIO [antihemophilic factor (recombinant), Fc-VWF-XTEN fusion protein-ehtl], a new class of factor VIII replacement therapy for people with hemophilia A that delivers normal to near-normal factor activity levels (over 40%) for most of the week. As the first and only high-sustained factor VIII replacement therapy, it provides significant bleed protection with one weekly dose. The approval of this innovative treatment can empower patients and physicians to elevate treatment expectations.

Dr. Johnathan Roberts, Associate Medical Director from The Bleeding & Clotting Disorders Institute in Illinois and hemophilia A patient, to discuss the importance of maintaining factor activity levels and this new treatment for hemophilia A.

Interview is courtesy of Sanofi.

INDICATION
ALTUVIIIO [antihemophilic factor (recombinant), Fc-VWF-XTEN fusion protein-ehtl] is an injectable medicine that is used to control and reduce the number of bleeding episodes in people with hemophilia A (congenital Factor VIII deficiency).

Your healthcare provider may give you ALTUVIIIO when you have surgery.

IMPORTANT SAFETY INFORMATION

What is the most important information I need to know about ALTUVIIIO?
Do not attempt to give yourself an injection unless you have been taught how by your healthcare provider or hemophilia center. You must carefully follow your healthcare provider’s instructions regarding the dose and schedule for injecting ALTUVIIIO so that your treatment will work best for you.

Who should not use ALTUVIIIO?
You should not use ALTUVIIIO if you have had an allergic reaction to it in the past.

What should I tell my healthcare provider before using ALTUVIIIO?
Tell your healthcare provider if you have had any medical problems, take any medications, including prescription and non-prescription medicines, supplements, or herbal medicines, are breastfeeding, or are pregnant or planning to become pregnant.

What are the possible side effects of ALTUVIIIO?
You can have an allergic reaction to ALTUVIIIO. Call your healthcare provider or emergency department right away if you have any of the following symptoms: difficulty breathing, chest tightness, swelling of the face, rash, or hives.

Your body can also make antibodies called “inhibitors” against ALTUVIIIO. This can stop ALTUVIIIO from working properly. Your healthcare provider may give you blood tests to check for inhibitors.

The common side effects of ALTUVIIIO are headache, joint pain, and back pain.

These are not the only possible side effects of ALTUVIIIO. Tell your healthcare provider about any side effect that bothers you or does not go away.

Please see full Prescribing Information.

Interview is courtesy of Sanofi

The post ADVANCING CARE FOR PEOPLE WITH HEMOPHILIA April 17, 2023 is World Hemophilia Day appeared first on Good News!.

Peace Day 9/21/21 Update for Virtual Broadcast, Children’s 9/11 message

Austin Tang — Sun, 12 Sep 2021 21:29:58 +0000

We start the Good NewsLetter with a link shared by Dr. Bob Lee, from his WBLS Radio Program of Children’s Powerful Reaction to 9/11. Here is the link: https://goodnewsplanet.com/dr-bob-lee-shares-childrens-reactions-from-911-on-his-wbls-radio-program/ NO MORE WAR PLEASE.

We mentioned last week that nonprofit, Good News Corporation, has decided to postpone for the Greater Good our Times Square Peace Day Party and after party at Playa Betty/Westside Comedy Club Events on September 21, 2021, as Times Square is a very open location and we have a concern of COVID Variants.

WE WILL GO VIRTUAL ON September 21, 2021 www.peacedayparty.org and broadcast on www.goodnewsplanet.TV and other media at 7PM EST. We will start the broadcast with ringing the bells for our heroes. WATER will be our focus, the essence of life and sharing the importance and beauty of it. Our show The Water Hour, for over 23 years has been supporting the importance of water. Go to: https://goodnewsplanet.com/shows-series-movies/the-water-hour/ To volunteer or questions please call me 212 647 1212 Paul

Participants in our broadcast have been over 100 corporations, organizations, dignitaries and celebrities, UN Peace Messengers who have shared Peace messages, i.e. Ringo Starr, Paul McCartney, Michael Douglas, Leonardo DiCaprio, Dr Jane Goodall, Shakira, Stevie Wonder, Dr. Mahmet Oz, Ed Asner, Dr. Deepak Chopra, World Peace Orchestra, Pope Francis, Broadway Show Annie, Peace Prevail on Earth, David Lynch Foundation, Harlem Globetrotters, UNESCO, New York City Schools to name a few. McKinsey & Co. state that there are 1.6 Billion people who will be aware of Peace Day.

In addition, to many of the above heroes for Peace we will include: Governor Kathy Hochul, Borough Presidents Gale Brewer, Eric Adams sharing proclamations, Ms. Ma from China, Family Film Awards/Dr. Gellini from LA, Dionne Warwick, Kemp Harris, Chloe Temtchine, SaulPaul, Dr. Gennini, Dr. Bob Lee, Donna Stein and Ken Gale/Eco-Logic, Pete Seeger, Katya Grineva, Giorgia Fumanti, Indiggo Twins, Keith Fiveson, Sunflower Farm, Reid Stowe, Marc Segelnick/David Kirschner, Socially Responsible Corporations, i.e., Bill Levine/Sarabeth Corporation, Luke’s Lobsters, Playa Betty/Westside Comedy Club, Hugg a Planets, Dr. Greg Harmon, Claire Diab, Laura Norman. Rick Ulfic, Dr. Kazuko/Gaia, Montauk Sun, 1-800FLOWERS/Smile Farms, Hugo Boss/Sam Waxman Cancer Research, Quinnipiac University, Italian Government Tourist Board and more to come.

BE PART OF A RAFFLE TO WIN A TRIP TO THE MONTAUK MANOR BY DONATING TO www.peacedayparty.org.

Please go to www.peacedayparty.org and make a donation.

Please support our nonprofit, 501 C 3, Good News Corporation at http://goodnewsplanet.com/peacedayparty/peace-day-donations/

LET’S GROW TOGETHER. GOOD NEWS MOTTO: ALL WE ARE IS WHAT WE ARE WITH EACH OTHER. ZEAL

For more information contact:

Paul Sladkus 212 647 1212

New York, NY, Montauk, NY

PS – CALL ME IF YOU WANT TO GO TO THE MONTAUK MANOR. PAUL

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Thought Of The Day…

Austin Tang — Sat, 06 Feb 2021 15:22:47 +0000

Reactions
“You will continue to suffer if you have an emotional reaction to everything that is said to you. True power is sitting back and observing things with magic. True power is restraint. If words control you that means everyone else can control you. Breathe and allow things to pass.” -Warren Buffett

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TIPS FOR NAVIGATING THE HOLIDAYS WHEN COPING WITH A MENTAL HEALTH CONDITION

Austin Tang — Fri, 11 Dec 2020 19:23:45 +0000

Listen to “TIPS FOR NAVIGATING THE HOLIDAYS WHEN COPING WITH A MENTAL HEALTH CONDITION” on Spreaker.
http://goodnewsplanet.com/wp-content/uploads/2020/12/mental_health_1.mp3

The holiday season can be a joyous time of year, but it can also be a stressful time for many people. Whether it’s financial worries over a long gift list, anxiety about difficult family dynamics, exhaustion from juggling a hectic schedule, or loneliness being apart from loved ones due to these unprecedented times, emotions are often heightened at this time of year and mood changes are common.1
Even people with no history of mental illness may feel confused about whether they are experiencing the temporary feelings of “depression” associated with the “holiday blues” or if symptoms may be something more serious that should be discussed with their healthcare provider.
And for the 1 in 5 Americans who are living with pre-existing mental health conditions, research shows that the holidays can be particularly challenging.2 In fact, 64% of people with mental illness report holidays make their conditions worse.1
This can be especially true for people who struggle with certain mental health conditions that can be exacerbated by stress. For those living with bipolar I disorder, for example, stress, sleep disruption, and heightened emotional reactions to their environment—all common around “the most wonderful time of the year”—can trigger both manic and depressive episodes,3,4 so it’s important that people work to manage stress and monitor symptoms closely.
Psychiatric Nurse Practitioner, Dr. Jessica Whelan, discusses why the holiday season can be particularly challenging for people living with mental health conditions like bipolar I disorder, the difference between holiday blues and bipolar I disorder, and a treatment option people living with bipolar I disorder can discuss with their doctors.
Dr. Jessica Whelan is a compensated spokesperson for AbbVie.
References:
1. Mental Health and The Holiday Blues. National Alliance on Mental Illness. https://www.nami.org/Press-Media/Press-Releases/2014/Mental-health-and-the-holiday-blues. Accessed November 17, 2020.
2. Mental Health By the Numbers. NAMI.org. https://www.nami.org/mhstats. Accessed November 17, 2020.
3. Bipolar Disorder. NAMI.org. https://www.nami.org/About-Mental-Illness/Mental-Health-Conditions/Bipolar-Disorder. Accessed November 17, 2020.
4. Bipolar disorder. medlineplus.gov. https://medlineplus.gov/genetics/condition/bipolar-disorder/#causes. Published August 18, 2020. Accessed November 17, 2020.

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Thought for the Day…

admin — Wed, 23 Aug 2017 19:31:55 +0000

A positive attitude causes a chain reaction of positive thoughts, events and outcomes. It is a catalyst and it sparks extraordinary results.
Wade Boggs

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