Hemophilia A is a rare, lifelong condition in which a person’s blood does not clot properly due to a missing or defective factor VIII clotting protein. While hemophilia mainly impacts men, it can also affect females.

People living with hemophilia A can experience bleeding episodes during everyday activities, which can cause chronic pain and irreversible joint damage, and may impact their quality of life.

The severity of hemophilia is determined by “factor activity levels,” or the amount of clotting factor in the blood. People with lower factor activity levels have a greater risk of bleeds, while those with higher factor activity levels have better protection.

Recently, the FDA approved ALTUVIIIO [antihemophilic factor (recombinant), Fc-VWF-XTEN fusion protein-ehtl], a new class of factor VIII replacement therapy for people with hemophilia A that delivers normal to near-normal factor activity levels (over 40%) for most of the week. As the first and only high-sustained factor VIII replacement therapy, it provides significant bleed protection with one weekly dose. The approval of this innovative treatment can empower patients and physicians to elevate treatment expectations.

Dr. Johnathan Roberts, Associate Medical Director from The Bleeding & Clotting Disorders Institute in Illinois and hemophilia A patient, to discuss the importance of maintaining factor activity levels and this new treatment for hemophilia A.

Interview is courtesy of Sanofi.

INDICATION
ALTUVIIIO [antihemophilic factor (recombinant), Fc-VWF-XTEN fusion protein-ehtl] is an injectable medicine that is used to control and reduce the number of bleeding episodes in people with hemophilia A (congenital Factor VIII deficiency).

Your healthcare provider may give you ALTUVIIIO when you have surgery.

IMPORTANT SAFETY INFORMATION

What is the most important information I need to know about ALTUVIIIO?
Do not attempt to give yourself an injection unless you have been taught how by your healthcare provider or hemophilia center. You must carefully follow your healthcare provider’s instructions regarding the dose and schedule for injecting ALTUVIIIO so that your treatment will work best for you.

Who should not use ALTUVIIIO?
You should not use ALTUVIIIO if you have had an allergic reaction to it in the past.

What should I tell my healthcare provider before using ALTUVIIIO?
Tell your healthcare provider if you have had any medical problems, take any medications, including prescription and non-prescription medicines, supplements, or herbal medicines, are breastfeeding, or are pregnant or planning to become pregnant.

What are the possible side effects of ALTUVIIIO?
You can have an allergic reaction to ALTUVIIIO. Call your healthcare provider or emergency department right away if you have any of the following symptoms: difficulty breathing, chest tightness, swelling of the face, rash, or hives.

Your body can also make antibodies called “inhibitors” against ALTUVIIIO. This can stop ALTUVIIIO from working properly. Your healthcare provider may give you blood tests to check for inhibitors.

The common side effects of ALTUVIIIO are headache, joint pain, and back pain.

These are not the only possible side effects of ALTUVIIIO. Tell your healthcare provider about any side effect that bothers you or does not go away.

Please see full Prescribing Information.

Interview is courtesy of Sanofi

The post ADVANCING CARE FOR PEOPLE WITH HEMOPHILIA April 17, 2023 is World Hemophilia Day appeared first on Good News!.

Jean Shafiroff hosts luncheon in honor of the American Humane with Dr.  Robin Ganzert

at Swiftys at the Colony Hotel in Palm Beach, Florida (photo credit: CapeHart Photography / Jessica Lawten)

Jean Shafiroff, philanthropist, television host, and author of Successful Philanthropy: How to Make A Life By What You Give, hosted an outdoor luncheon at Swiftys at The Colony Hotel in Palm Beach, FL in honor of American Humane.

The luncheon was attended by a group of guests and supporters of the work of the Organization.  Those in attendance included Jean Shafiroff (Board Member), Dr. Robin Ganzert (Executive Director), Ava Roosevelt, Kim Dryer, Kathleen Gannon, Sharon Jablin, Pamela O’Connor, Lauren Roberts, Janet Levy, Pamela Wright, Elizbeth Steinberg and Rashmee Sharma.

Jean Shafiroff greeted guests and spoke about the many programs that American Humane performs. “Philanthropy is my passion,” said Mrs. Shafiroff. “I am deeply moved by the incredible work American Humane does throughout the world, and it was an absolute honor to welcome Dr. Ganzert and my dear friends to celebrate the vital programs and services the organization provides.” Next Jean Shafiroff introduced Dr. Robin Ganzert who spoke about the work of the international work of the American Humane

To download selected photos, please visit: https://bit.ly/3G0UHLy

Photo Credits: CapeHart Photography / Jessica Lawten

About American Humane:

American Humane is the country’s first national humane organization. Founded in 1877, American Humane is committed to ensuring the safety, welfare and well-being of animals, and our leadership programs are first to serve in promoting and nurturing the bonds between animals and people. For more information or to support our work, please visit www.americanhumane.org and follow us on Facebook, Twitter and Instagram.

About Jean Shafiroff:

Jean Shafiroff is a philanthropist, humanitarian, TV host, writer, and the author of the book “Successful Philanthropy: How to Make a Life By What You Give”. Jean works extensively as a volunteer fundraiser and leader in the philanthropic world. She serves on the boards of 8 charitable organizations and each year chairs upwards of eight to 9 different charity galas. Among the many causes she champions are those involved in women’s rights, rights of the underserved, health care, and animal welfare.

Jean serves on the boards of the American Humane, Southampton Hospital Association, NYC Mission Society, French Heritage Society, Couture Council of the Museum at FIT, Global Strays, New York Women’s Foundation, Casita Maria, and Southampton Animal Shelter Foundation Honorary Board. A Catholic, she served on the board of the Jewish Board for 28 years and now is one of their honorary trustees. Jean Shafiroff is an influencer and has over 1.2m Instagram followers.

For more information please visit www.jeanshafiroff.com

Jean Shafiroff is a influencer and has over 1.2m Instagram followers.

I: @JeanShafiroff @JeanShafiroffAtWork | F: jean.shafiroff | T: @JeanShafiroff

PRESS CONTACT (Jean Shafiroff):

Norah Lawlor | Lawlor Media Group | www.lawlormediagroup.com

Norah@lawlormediagroup.com | Tel: (212) 967-6900

I: lawlormedia F: LawlorMediaGroup |  T: @LawlorMedia

Jean Shafiroff, Rosita (photo credit: CapeHart Photography / Jessica Lawten)

Jean Shafiroff, Pamela O’connor, Robin Ganzert, Vickie Schnepps (photo credit: CapeHart Photography / Jessica Lawten)

Rashmee Sharma, Sharon Jablin, Dr. Robin Ganzert (photo credit: CapeHart Photography / Jessica Lawten)

Atmosphere (photo credit: CapeHart Photography / Jessica Lawten)

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The post Philanthropist & Board Member Jean Shafiroff Hosts Luncheon in Honor of American Humane appeared first on Good News!.

Listen to “Multitalented Award Winning Patrick Bergin shares his Good News…Lucky Us…Like a 4 Leaf Clover:^)” on Spreaker.

Patrick Connolly Bergin (born 4 February 1951)[2] is an Irish actor and singer perhaps best known for his leading role opposite Julia Roberts in Sleeping with the Enemy (1991) and for his stint playing the villainous Aidan Maguire in the BBC soap EastEnders from November 2017 until March 2018.

http://jag-london.com/clients/item/patrick-bergin.html

https://youtu.be/XysvCfFYrjg
Film.

FINDING YOU, Seamus – Red Sky Studios (director: Brian Baugh)
THE LAST DAYS OF AMERICAN CRIME, Rossi Dumois – Netflix (director: Olivier Megaton)
BLACKBIRD, The Head – Blackbird Film Productions Ltd (director: Michael Flatley)
TRAINSET, Julian – Solarus Films (director: Rob Burrows)
FREE FIRE, Howie – Rook Films (director: Ben Wheatley)
WE STILL STEAL THE OLD WAY, George Briggs – Evolution Pictures (director: Sacha Bennett)
AGE OF KILL, Sir Alistair Montcrief – Richwater Films (director: Neil Jones)
DANCE OF THE STEEL BARS, Frank – Portfolio Films (director: Cesar Apolinario)
THE WEE MAN, Arthur Thompson – Carnaby International (director: Ray Burdis)
DANCE OF THE STEEL BARS, Frank Parish – Marnie Manicad Prods (director: Stuart Cameron)
A KISS AND A PROMISE, Det Anthony Dolan – Lab4 Prods (director: Phillip Guzman)
ICE, Quinn – Pure Films (director: Nick Copus)
ELDORADO, Roy – Darren Moore (director: Richard Driscoll)
PROJECT FEAR, Captain Morrow – Unconditional Entertainment (director: John Milton Branton)
EVE, Oswald – Artis Films Romania (director: Adrian Popovici)
GALLOWWALKER, Mrshall – Gaza Gallowwalker Ltd (director: Andrew Goth)
ONE STEP BACK, Mr Big – 1-Step Prods (director: Barry O’Neill)
STRENGTH AND HONOUR, Papa Boss – Maron Pictures (director: Mark Mahon)
THE BLACK PIMPERNEL, Senator Davis – Moviefan Scandinavia (director: Ulf Hultberg)
PLAYED, Riley – Celebration Pictures (director: Sean Stanek)
JOHNNY WAS, Flynn – Was Productions (director: Mark Hammond)
GHOSTWOOD, Fr Paul – Maxim Pictures (director: Justin O’Brien)
SECRET OF THE CAVE, Roy’s Father – Shadowhawk Films (director: Zach Gray)
THE FAR SIDE OF JERICO, Jake – Further Prods (director: Tim Hunter)
ELLA ENCHANTED, Sir Peter – Miramax (director: Tommy O’Haver)
BLOOM, The Citizen – Odyssey Pictures (director: Sean Walsh)
THE BOYS AND GIRL FROM COUNTY CLARE, Padjo – Studio Hamburg (director: John Irvin)
BENEATH THE LOCK, Blay – Loch Ness Productions (director: Chuck Comisky)
DEVIL’S PREY, Seth – Triad Productions (director: Bradford May)
FALSE PROPHETS, Karl (director: Robert Townsend)
AMAZONS AND GLADIATORS, Crassius – Drotcroft (director: Zachary Weintrau)
VIKING BEZERKERS, Thorson – Peakviewing (director: Paul Matthews)
THE INVISIBLE CIRCUS, Gene – Justine Pictures (director: Adam Brooks)
CAUSE OF DEATH, Taylor – Cinequest (director: Marc Grenier)
HIGH EXPLOSIVE, Jack Randall – GMT Landmine Films Inc (director: Tim Bond)
WHEN THE SKY FALLS, Mackie – Irish Screen (director: John Mackenzie)
AFRICA, John Young – Peakviewing (director: Paul Matthews)
MERLIN, Arthur – PeakViewing (director: Paul Matthews)
THE PRESS RUN, Alec – Allegro Films (director: Robbie Ditchburn)
EYE OF THE BEHOLDER, Alex – Filmline International (director: Stephan Elliott)
PROMISE HER ANYTHING, Vernon Fry – Slingshot Prods (director: Alain Zaloum)
ESCAPE VELOCITY, Cal – North American Pictures Ltd (director: Lloyd Simandl)
TREASURE ISLAND, Billy Bones – Pirate Films Ltd (director: Peter Rowe)
ONE MAN’S HERO, General Winfield Scott – San Patricio Prods (director: Lance Hool)
SUSPICIOUS MINDS, Jack Ramsey – Slingshot Minds Films Inc (director: Alain Zaloum)
LAWNMOWER MAN III, Dr Angelo – New Line Entertainment (director: Farhad Mann)
DOUBLE CROSS, Jack Conealy – Interglobal (director: Michael Keusc)
MAP OF THE HUMAN HEART, Walter – Working Title/Polygram (director: Vincent Ward)
PATRIOT GAMES, Kevin – Paramount Pics (director: Philip Noyce)
HIGHWAY TO HELL, Beezie – Hemdale Film Corp (director: Ate de Jong)
LOVE CRIMES, David – Sovereign Pictures (director: Lizzie Borden)
SLEEPING WITH THE ENEMY, Martin – 20th Century Fox (director: Joe Rubin)

Television

THE SOUTH WESTERLIES, Big Mike – Deadpan Pictures (director: Simon Gibney)
WILD BILL, Frank McGill – ITV (director: Annie Griffin)
QUANTICO, Liam Killoran – ABC & Disney (director: Russell Lee Fine)
EASTENDERS, Aidan Maguire (series regular) – BBC One (director: Various)
RED ROCK, Jim Walsh – TV3 (director: Various)
NO OFFENCE, Earl Kennedy – Channel 4 (director: Catherine Morshead)
ICE, Quinn – Power/Screentime (director: James Follett)
HUSTLE, Mr Baxter – Kudos) Dir. Julian Simpson
CASANOVA’S LOVE LETTER, Casanova – Solar Productions (director: Mark Murphy)
ICON, Igor Komarvov – Hallmark (director: Charles Martin Smith)
SMALLVILLE, Morgan Edge (guest lead) – Warner Bros TV
BRUSH WITH FATE, Headmaster – Hallmark (director: Brent Shields)
DRACULA, Dracula – Lux Vide (director: Roger Young)
KING OF TEXAS, Highsmith – Milk & Honey Prods (director: Uli Edel)
JEWEL, Leston Hilburn – CBS/Citadel/Alliance (director: Paul Shapiro)
THE RIPPER, Inspector Jim Hansen – Calamari Prods Ltd (director: Janet Meyers)
Stolen Woman, Captured Heart, Daniel Morgan (CBS/SHOWTIME) Dir. Jerry London
APOCALYPSE WATCH, Drew – ABC (director: Kevin Connor)
FRANKENSTEIN, Dr Victor Frankenstein – David Wickes Television (director: David Wickes)
ROBIN HOOD, Robin Hood – Working Title/20th Century Fox (director: John Irvin)
MORPHINE AND DOLLY MIXTURES, Terence O’Farrell – BBC (director: Karl Francis)

In 1993, Bergin bought an old church in Tipperary and converted it into a poetry centre. Bergin explained, “I’ve recently come to feel I can encourage children and teenagers with their writing.[6] I’m continually giving groups money to make videos, but I insist that they have a good script. I do it because it makes the difference between them doing a video or not. It doesn’t cost a lot, and it gives kids an incredible boost of confidence.”[6] In 1998, in response to the murder of a 14-year-old Tallaght boy, Ben Smyth, Bergin participated in setting up a special fund to sponsor young children from Tallaght.[4]

#patrick #bergin #leaf #clover #connolly #irish #actor #singer #leading #role #julia #roberts #sleeping #enemy #stint #playing #villainous #aidan #maguire #eastenders #tipperary #poetry #church #ben #smyth

The post Multitalented Award Winning Patrick Bergin shares his Good News…Lucky Us…Like a 4 Leaf Clover:^) appeared first on Good News!.

November 5-6, 2019

Greenwich, CT USA

Ken Kencel

Listen to “An Alternative Investment Conference Focusing On The Defining Issues Of Our Times” on Spreaker.

Byron Allen

Listen to “An Alternative Investment Conference Focusing On The Defining Issues Of Our Times-Byron Allen” on Spreaker.

Ambassador Craig Roberts Stapleton

Listen to “An Alternative Investment Conference Focusing On The Defining Issues Of Our Times-Ambassador Stapleton” on Spreaker.

Charles Davis

Listen to “An Alternative Investment Conference Focusing On The Defining Issues Of Our Times-Charles Davis” on Spreaker.

Stephen McConnell Case

Listen to “An Alternative Investment Conference Focusing On The Defining Issues Of Our Times-Steve Case” on Spreaker.

Robert Smith

Listen to “An Alternative Investment Conference Focusing On The Defining Issues Of Our Times-Robert Smith” on Spreaker.

Leslie Picker, Reporter – Hedge Funds and Private Equity, CNBC. Christopher Hyzy, Managing Director and CIO Bank of America Corporation

Listen to “An Alternative Investment Conference Focusing On The Defining Issues Of Our Times-Leslie Picker” on Spreaker.

Marc Lasry, Chairman, CEO and Co-Founder, Avenue Capital Group

Anton Chan, RMB Specialist, Standard Chartered Bank

Listen to “An Alternative Investment Conference Focusing On The Defining Issues Of Our Times-Anton Chan” on Spreaker.

William Ma, CIO, Noah (Hong Kong), CIO, Gopher; CEO,Gopher Redwoods

Eva Shen, Head of WFOE Client Solutions, Guotai Janan Futures

John Tan, Rgional Head, Financial Markets, East, Standard Chartered Bank

Byron Allen, Chairman and CEO, Entertainment Studios

Robert Smith, Founder and Managing Partner, IECP Ventures

David Rubenstein, Co-Founder and Co-Executive Chairman, The Carlyle Group

Listen to “An Alternative Investment Conference Focusing On The Defining Issues Of Our Times-David Rubenstein” on Spreaker.

Chuck Davis, CEO, Stone Point Capital

Julia La Roche, Correspondent, Yahoo Finance

Listen to “An Alternative Investment Conference Focusing On The Defining Issues Of Our Times-Julia La Roche” on Spreaker.

Steve Case, Founder, Revolution and AOL

Gerald Parsky, Founder and Chairman, Aurora Capital

Alan Patricof, Founder and Managing Director, Greycroft

Jim Aiello, Co- Founder, Greenwich Economic Forum

Listen to “An Alternative Investment Conference Focusing On The Defining Issues Of Our Times-Jim Aiello part 1” on Spreaker.

Listen to “An Alternative Investment Conference Focusing On The Defining Issues Of Our Times-Jim Aiello part 2” on Spreaker.

Listen to “An Alternative Investment Conference Focusing On The Defining Issues Of Our Times-Jim Aiello part 3” on Spreaker.

Bruce McGuire, Co-Founder, Greenwich Economic Forum

Peter Tesel, First Selectman, Town of Greenwich

Ned Lamont, Governor, State of Connecticut

Ray Dalio, Founder, Co-CIO and Co-Chairman, Bridgewater Associates

Paul Tuder Jones, Co-Chairman and CIO, Tudor Investment Corp.

The Greenwich Economic Forum (GEF) is a global alternative investment industry conference that convenes some of the brightest minds in global finance for discussions on global trade, capital markets and investing. GEF is C-suite level event of 400 leaders and executives at a waterfront setting in Greenwich, CT. 

2019 SAMPLE SPEAKERS

Ray Dalio
Founder, Co-CIO & Co-Chairman
Bridgewater Associates

David M. Rubenstein
Co-Founder and Co-Executive Chairman
The Carlyle Group

Paul Tudor Jones
Co-Chairman and Chief Investment Officer
Tudor Investment Corporation

Mohamed A. El-Erian
Senior Adviser
Gramercy Funds Management

Afsaneh Beschloss
Founder, Chief Executive Officer
Rockcreek

Marc Lasry
Chairman, CEO and Co-Founder
Avenue Capital Group

Gillian Tett
Editor-at-Large and Chairman of the Editorial Board
Financial Times

Steve Case
Chairman and CEO
Revolution

Byron Allen
Founder
Entertainment Studios

See All Speakers

2019 ATTENDING FIRMS

Abbey Capital
Abilis
ABL Consulting Group
Abu Dhabi Investment Authority
Affiliated Managers Group
AICA
AIMA
Albourne
Alekstra
Alera Partners
Alfred P. Sloan Foundation
AllBright Law Offices
Allianz
AMB Consolidated
APG Asset Management
Archdiocese of New York
Ares Credit Group
Aspetuck Capital Management
Asymmetric Capital Management
Aurora Capital
Avenue Capital Group
Awbury
AXIS Capital
Axonic Capital
Bank of America
Banque Commerciale du Congo
Bessley Capital
Bipartisan Policy Center
BJC
Blackstone
Block Tower
Bloomberg
BLT
Boys & Girls Club of Greenwich
Bridgewater Associates
Brook Lands
Bruce Museum
Bullish
Caisse de depot et placement du Quebec (CDPQ)
CalALTs
Cambridge Associates
Carlyle Group
Charles Stewart Mott Foundation
China Industrial Securities Co.
China Investment Corporation (CIC)
Churchill Asset Managament
Commonwealth Superannuation Corporation
CNBC
CNH Finance
Connecticut China Council
ConNEXT Consulting
Cornell University
CPPIB
CT-HFA
Dalio Family Office and Philanthropies
David Lynch Foundation
DH Fund Management Co.
Doris Doo Charitable Foundation
Doubletree investment Partners
Dyal Capital Partners
Eagle Point Credit Management
Easton Capital Management
Edgewood Capital Advisors
Entertainment Studios
Episteme Capital
EQT
eRiver Consulting
Eurex
EXOR / PartnerRe
Falls Bridge
Financial Times
Flextone Capital Partners
Forbes
FS Investments
FTI Consulting
Fund Black Founders
Further Global
General Atlantic
Geneve Corp
GirlsWhoInvest.org
Gjensidige Forsikring
Global Alpha Research
Golub Capital
Gramercy Funds Management
Great Wall Fund Mgmt
Greenwich Business Institute
Greenwich Hospital Foundation
Greycroft
Guardian Life
Guotai Junan Futures
Hartford Investment Management Company
HESTA
Howard Family Office
IBM Pension Fund
IECP Ventures
Indus Capital Partners
Institute for Advanced Study
Institutional Investor
Jayaram Law

Jefferies
Jennison Associates
Jersey Finance
JUST Capital
K2 Advisors
Kactus Capital
Kokino
Labaton Sucharow
Lattice Capital Management
Liberty Mutual
Lockheed Investment Management Corp
Louisiana State Employees Retirement
Lucern Capital
Marcum
MassMutual Investment Management
MassPRIM
MediaTECH Capital Partners
Merrill Lynch
Molecular Electricity
Mutual of Omaha
Nasdaq Private Market
Nationwide
Nazarov Collection
NBK Capital
Neuberger Berman
New Holland Capital
Nuveen
NYS Common Retirement Fund
Oak HC/FT
Olympus Hedge Fund Investments
Owl Rock Capital Partners
P/E Investments
PartnerRe
PAXIS Key Holdings
Peak Ten Capital
Penghua Fund Management
Pennington Partners
Perestroika AS
Pfizer
Podomus Capital Partners
Q-Search & Advisory
QP Global Family Offices
R-Squared Consulting
Rayliant Global Advisors
Revolution
RFA
RockCreek
Ronald Reagan Presidential Library Foundation
Ropes & Gray
RYZZ Capital Management
S&P Global Market Intelligence
Sarissa Capital Management
Sen Family Office
Shanghai Dongjia Culture
Shenkman Capital Management
Shenzhen Angle Wing Capital
Shenzhen Asset Mgmt Assn
Shenzhen Pusu Mgmt
Shenzhen Shangyuan Capital
Sina China News
Soho Properties
Sompo International
Soros Fund Management
Sotheby’s International Realty
State of Connecticut
Sterling Valuation
Stone Point Capital
Stony Brook Foundation
Strategas
Sunrise Capital Partners
Swiss Re
T5 Equity Partners
Texas Alternative Investments Association
Texas Tech University System
Textron
tFOSE Group Holdings
Titan Advisors
The Economist
The Wall Street Journal/Pensions & Investments
ThyssenKrupp
TIAA
Tudor Investment Corporation
United Nations Joint Staff Pension Fund
Universa Investments
University of Miami
University of Pennsylvania
Vanguard
Warburg Pincus
Welton Investment Partners
Wharton Property Advisors
Wilton Re
Winton
Wolfson Group
Yahoo Finance
Yale Investment Office
Yarra Capital
Yinhua Fund Management
ZRG Partners

Venue:

Delamar Greenwich Harbor Hotel
500 Steamboat Rd
Greenwich, CT 06830
203-661-9800

The post An Alternative Investment Conference Focusing On The Defining Issues Of Our Times November 5-6, 2019 appeared first on Good News!.