Hope for Those with Hemophilia

Austin Tang — Tue, 15 Dec 2020 15:29:23 +0000

Listen to “Hope for Those with Hemophilia” on Spreaker.

STORIES OF INSPIRATION
During Holiday Season
https://www.hemlibra.com/

In recent years, people with hemophilia A have found hope thanks to important developments in the treatment of this bleeding disorder. For some living with this chronic condition, this may mean experiencing the coming holiday season with a new outlook on living with hemophilia A.

Guy is in his mid-30’s and was diagnosed with hemophilia A at birth. As a child, he experienced spontaneous brain bleeds at 18-months-old and again at three-years-old, which led to him becoming legally blind and experiencing seizures. Guy remembers going to the hospital multiple times a week for treatment and having over 20 surgeries. As a young adult, he avoided certain activities that might lead to a bleed.

Hemophilia A is a rare genetic bleeding disorder, typically diagnosed at a very young age, in which a person’s blood does not clot properly, leading to uncontrolled bleeding that can occur spontaneously. There are approximately 20,000 people who have hemophilia in the United States, with hemophilia A being the most common form.1,2 For people diagnosed with this rare condition, it can be a life-altering diagnosis. Even with treatment, hemophilia A can result in bleeds in muscles and joints that may lead to joint damage and chronic pain.2

People like Guy can face significant challenges managing their condition.3 After decades of accepting this as his normal, he began a different medicine that he takes once a month and has experienced fewer bleeds requiring treatment. Guy recently earned a master’s degree to pursue a career in strategic marketing. He has so much to celebrate this holiday season–it will be particularly special as his first as a newlywed after getting married in a small ceremony this past June.

Dr. Amy Shapiro, a hematologist-oncologist and Co-Founder of the Indiana Hemophilia and Thrombosis Center along with Guy Law, to discuss the impact this latest treatment continues to have for people living with hemophilia A.

Interview is courtesy: Genentech

1 Hemophilia Federation of America. Hemophilia A. https://www.hemophiliafed.org/understanding-bleeding-disorders/what-ishemophilia/hemophilia-a. Accessed October 12, 2020.
2 Mayo Clinic. Symptoms and Causes. https://www.mayoclinic.org/diseases-conditions/hemophilia/symptoms-causes/syc20373327. Accessed October 12, 2020.
3 Bauer, K. A. (2015). Current Challenges in the Management of Hemophilia. American Journal of Managed Care, 21(6).

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DVT Blood Clots: Know The Stats. Know Your Risk!

editor — Wed, 28 Mar 2007 04:00:00 +0000

DVT Blood Clots: Know The Stats. Know Your Risk – Kicks Off in March During DVT Awareness! Month! Award-Winning Actress and Singer Lainie Kazan Travels Across the Country Urging Americans to Understand the Signs, Symptoms and Risk Factors for Deep-Vein Thrombosis (DVT) (Bridgewater, NJ, March 17, 2007) Entertainer and artist, Lainie Kazan, spent her entire life devoted to performing on the big screen, television and stages across the country, and now she is traveling to raise awareness about DVT blood clots, what she calls a silent killer.DVT affects up to two million people each year in the U.S. and its primary complication, pulmonary embolism (PE), claims up to 300,000 lives annually — more than breast cancer and AIDS combined.
Several years ago Lainie broke her foot and while recovering, developed deep-vein thrombosis (DVT) blood clots which broke off and traveled to one of her lungs. I have been given many gifts. One is my health says Lainie Kazan. Another is the ability to capture an audience’s attention, with song and the ability to make people laugh. This time, I’m using it to talk to people about my personal experience with DVT, a potentially fatal condition . a silent killer.To help educate the public about the signs, symptoms and risk factors for DVT, Kazan joins the DVT Blood Clots: Know The Stats. Know Your Risk. campaign. This year the educational program will travel to health/senior expos across the country beginning in March in support of DVT awareness month.Just like Lainie, most people don’t think they could develop DVT, so being aware of the signs and symptoms associated with DVT blood clots is crucial to help reduce the risk of developing one and its complications says Dr. Geno Merli, Professor of Medicine, Jefferson Medical College at Thomas Jefferson University, and Senior Vice President and Chief Medical Officer at Thomas Jefferson University Hospital. To learn more about DVT symptoms and assess their risk, people should speak to their healthcare professional.
More about DVT and Pulmonary Embolism (PE): Deep vein thrombosis (DVT) entails the formation of blood clots within deep veins of the body, most commonly occurring in the lower extremity. DVT occurs up in near 2 million individuals in the United States (US), each year. Pulmonary embolism, a serious complication of DVT, at times fatal, is responsible for the death of up to 300,000 people each year in the U.S. — more than breast cancer and AIDS combined. Yet, near three quarters of the American public is unaware of DVT and its complications, according to a national survey sponsored by the American Public Health Association.
The main problem underneath DVT involves a blockage of blood flow within the deep veins involved, owing to the formation of a blood clot within. Symptoms of acute leg pain and swelling may occur, as consequence of the blockade to blood flow. A PE occurs when part of the blood clot dislodges from its nest in the deep veins, and travels upstream by way of the blood flow, eventually reaching the lung, where it remains trapped. There ensues a blockade of the blood flow within the lungs. It interferes with the fresh oxygenation of blood within lungs, where naturally occurring within the body. There are many symptoms associated with PE, but the most common ones include shortness of breath, lateral chest pain worsened by deep breath in. The size and location of blood flow obstruction within the lungs determine in part the severity of the situation, in individual patients. Generally, severity goes up with the amount of blockade, and those who die from PE tend to have the largest of them all. There are well known risk factors to DVT, including prolonged immobility, major surgery, chronic medical ailments, cancer, age above 40 years, trauma, oral contraceptives, pregnancy and the post-partum.
The management of DVT includes prophylaxis, under certain risk conditions, and acute treatment in the patients in whom it occurred. The management of DVT involves several treatments including early mobilization, anti-embolism stockings or mechanical leg compression devices to enhance blood flow, and anticoagulants and/or blood-thinning drugs. It is important to consult your healthcare professional about the signs and symptoms associated with DVT.
For more information and a free risk assessment kit, visit http://www.dvt.net or call 1-866-MY-DVT-RISK

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Hope for Those with Hemophilia

DVT Blood Clots: Know The Stats. Know Your Risk!